Further cancers now.

  • 1 reply
  • 82 subscribers
  • 599 views

Originally diagnosed with Sclc in October 20 along with lymph nodes in the neck and in my left tonsil. 
tonsils removed Xmas 20. Started chemotherapy and radiotherapy in 30 doses to neck and lung and the 12 months of immunotherapy ending March 22. 
PET scan in November 22 showed neck, tonsils clear and lung showed shrinkage. 
Fresh PET scan two weeks ago shows the lung is now progressive and I’m now showing in the lymph nodes of both lungs and both adrenal glands. 
could any of you kind souls tell me what further treatment I can expect as I’m on tenterhooks awaiting an appointment with my oncologist as he’s waiting for a report from microbiology. 
it’s worrying me sick now. 
Thanks for reading. 
Gerry. 

  • Gerry I feel for you.

    I believe the nhs only offers 2 years immunotherapy to stage 4 patients.  Apparently its 'not necessary' after 2 years . However, talking to a friend who is lucky enough to go private, you can stay on it as long as you want if you're willing to pay.

    Funny that isn't it.

    Obviously once you're paying it suddenly  becomes a 'good thing' to stay on it.

    Sorry I'm of no help, but like you it terrifies me that the oncologists can stop treatment just like that.I guess we stage 4s aren't seen as being very Cost Effecrive.