I feel abandoned

Hi Greengirl

Im sorry to read your post.I can’t help much with the medical side but I wanted to say stick in there.Monday ring your lung cancer nurse and it maybe better.

I know how hard it is waiting especially now with this virus going on.It’s like being in limbo and not knowing is so hard.

I hope it gets sorted soon for you.I’m sure you will get some more posts so stay strong.I hope this helps in someway.

Hi greengirl. I hope you are feeling better this morning.  I’m sorry you are feeling abandoned. I think it was wrong for the lung nurse to say she would ring you after the MDT as it really isn’t her place to do so. We have seen this happen before, and the nurse had given the wrong information. 

I know you were waiting for the results of the PET scan. It is usual to have a PET scan before a biopsy, so that may still happen. 

I’m really not sure why the university college hospital were phoning you for more information? Maybe they should be contacting the hospital that referred you in the first place. 

Things are taking a little longer because of covid, but cancer care is still happening. I am guessing that if you don’t have a letter today, then you will hear on Monday. If not then phone your lung nurse then and see if the PET scan results are back. 

We all do understand the panic you are feeling right now. It is the most awful feeling. I will never forget the day I received a phone call from my GP telling me I had lung cancer in both lungs, and prognosis wasn’t good. I wasn’t home when I received that call, and I collapsed to the ground. I then had to drive myself home to my young family  and pretend everything was ok. Until all the tests are done, you really are on the worst rollercoaster of your life. It does seem to take forever to get to the point of diagnoses and treatment plan, but that is because you are sat there waiting for that call. We don’t know what is going on behind the scenes. But your oncology team will be working hard to get the best treatment plan for you. 

Dear Chelle

Thank you so much for taking the time to reply. It really means a lot.

That must have been so awful for you, receiving such devestating news about the lung cancer while you were out; then having to travel home to your children and act normally.

Even though we don't know each other, I am so sorry you went through that.

I am trying to be strong for my family, but can't stop playing various disastrous scenarios in my head. I know you understand, as does anyone who has been in this monstrous situation which has come like a bolt out of the blue.

I am full of 'what if's" ... what if they can't offer any treatment...what if they give me a terrible prognosis...what if any offer of treatment is postponed because of COVID, leading to a worst outcome.

Yesterday night a friend called with the sad news that her Grandfather had died at the age of 76, from Lymphoma. He had been in remission for 4 years. But then it came back with a vengence, and he was gone within the month.  I suppose it just made me think about how everyone in this situation is walking on a tightrope whose safety net is full of holes.

Anyway, rambling again, sincere thanks for your kindness.

Greengirl

Thanks Peggy. X