Hello, new here

I like distraction. My thoughts turn to the wrong thing when allowed to. Energy is quite labile. I do a walk if I can every day, if I don't, sleep is more fitful. I have suffered insomnia for a long time off and on. X

Hi I hope your feeling positive, I was diagnosed back in February and after

the first  round of tests was graded a pugh score C10, but had to keep working to pay of some back rent so the house was. safe, but not well enough for treatment now 11 months later still not well enough,but feel like I'm in good hands at royal county Sussex and kings college.

I do feel for you,I'm still living with the nausea and the amended hunger,but apart from feeling that I've aged 30 years in the Frist couple of months, it's the waiting for news that's the most important thing good or bad at least it gives me peace of mind 

Thank you, yes I'm feeling better!  Just wait for the next scan and hope it's either better or unchanged!  

Sometimes the totality of what is happening is like a ton of bricks.  Otherwise, I'm still doing all my hobbies and reading.  

Thank you for your response!

Thank you, yes I'm doing well, all told!  

I haven't experienced insomnia thankfully, although this medicine causes itching down to the nerves and that can be really aggravating at times!

Thank you for your response!

Good morning , again it's the waiting,thing are on the move for me.When I was told back in February I had HHC and that I was to sick for treatment it was the Frist time I saw the consultant and we all know what that's like.So I was told that chemo was the only option and we know that's palliative care But next weekend I'm going to kings for two days to meet the transplant team and a full MOT, just to see if they will except me if my liver function improves.So transplant another thing to get my head round  but only if I make the grade, feels like a spanner in the works.What are you reading at the moment?

Yes, I believe technically I am also doing palliative care, because the docs have made it clear to me there is no cure, only treatment to extend life.  But mentally I still treat it as if I could get better, or just keep cohabitating with the cancer indefinitely.

Re: too sick to treat...

I have my fingers crossed for your transplant!  It is such a catch-22 to have benchmarks to meet to be treated or receive specific kinds of care.

I was trying to change my diet to see if it would affect the cancer in any way, but now I am doing a food allergy-type diet because chemo killed my guts.   The price of staying alive..  

I'm reading a biography of Bloomsburg at the moment.  Literally just started it. We shall see.  Before that was Red Azalea, a memoir of 1950-1970s China.  

Sounds like a good read, I've seem to find my best reads where pick up in English section in libraries  when working abroad.If you find a good diet let me know, from the beginning my herpetology nurse (god bless her) told me protein and lots of it.I think we got the short straw at the cancer party, so complicated the liver.Stay warm and any food is better than none 

You should goole what's best to eat for your liver.

Wow, lots of protein!  I wasn't aware of that being helpful!  I asked my doctor about doing the keto diet-- some studies suggest that entering into ketosis prevents HCC cancer cells from dividing.  They are unable to run on ketones.  Although, another study found that HCC cells could also adapt, and begin running on ketones as well.  I did get the approval from my doc to try the keto diet, but I found it so challenging I didn't stick with it.  I can send links to the studies I found if you like.  

My worry in doing the keto diet was all that protein is synthesized in the liver.  I was concerned I would be asking it to do too much, with being diseased, and also converting protein into energy.

Hi  hope your ok,about the diet the Frist time I spoke to the hepatology  nurse back in March that it's better to have 3 small balance meals a day and snacks in-between all containing protein, wether animal or vegetable plus starchy carbs the most important snack is before going to bed. Fatty food is not advised it's food that takes a lot of energy for little results as the liver find it hard to store fat as energy when it's not working well.Better to eat protein which your liver can convert to maintain and repair and build muscle to stop malnutrition