Total Laryngectomy

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Hi everyone, unfortunately after radiotherapy did not treat the Cancer I have as expected I now need the full and Total Laryngectomy for which I have the operation in March this year. This is totally out of the blue , no warning of any kind. Though at present I am coping I will be meeting someone soon whos had the op to guide me through the procedure and what to expect. I have spent some time myself re-searching the ins-an-outs, pros-an-cons and feel more apprehensive about meeting someone gone through it than the actual life changing process itself. I've been looking for organisations that deal with this but the one that did, NALC, National Association of Laryngectomee Clubs does not exist any more but I'm still looking.

  • Hi there 

    I have had a total larangectomy in January 23, and another op to do flap due to issues, also radiotherapy. There are lots of support but it’s groups on face book I find and don’t find much here only lot of old things.