Radical nephrectomy and cancer aggressive starting to spread in 6 weeks since operation

FormerMember
FormerMember
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Hello all,

my husband (51 years old) had left radical nephrectomy because of a huge tumor on it. While still in hospital recovering he complained of abdominal pain and distension and vomiting, and they did scan and operated again because of adhesions.  We couldn’t visit him because of the virus. while in hospital he complained of left arm weakness and shock like sensations and after scan found brian lesion. 
He finally came home 3 weeks later....

He has had one stereotactic radiotherapy treatment for the brain lesion over 2 weeks ago but his arm is not much better as far as strength. He is taking 500mg Kepra twice a day. 
they are weaning him off steroids which are at 3mg daily and will go down .50mg every 5 days. 


its been 6 weeks since he’s home but he is still very weak. He’s struggling with constipation which causes major discomfort and abdominal pain. He is also on steroids which make sleep very difficult for him not to mention his mood. 
this week the pain is again troubling him so he started codeine again. 

we had meeting with oncologist yesterday who gave us devastating news that on the 6 week post op scan they can see more spread and new sarcomatoid cancer cells near where the kidney was. It is an aggressive type. Staged at 4. 


immunotherapy has been offered but I’m so worried that he is weak and hardly sleeps plus constipation and pain issues...... with side effects mentioned from treatment..... how will he manage

  • Hi , don't forget your employers are obliged under the Equalities Act  to make" reasonable adjustments", as cancer is covered by that act ( was the Disability Discrimination Act)  The helpline will have more info, on 0808 808 0000, 8am to 8pm.

    Fear of the unknown is the worst thing. Once we know what we're facing, we find the strength to deal with it.