Hi All.
Further to all the tests, scans, and examinations I have had recently, I received a copy of the letter to my GP which has confirmed my diagnosis.
It's a bit confusing though, and also a bit overwhelming. Here is what the consultant said ,
"Diagnoses:-
1- 8.5cm Lower pole cRCC.
2- Renal Vein level 1 Thrombus clinical T3a.
3-1.5cm left upper lobe lung nodule.
4-8mmright lower lobe lung nodule
5 Clinical Staging cT3a N0 M1 " (Not too sure what this all means )
That was copied as is from the letter.
I am scheduled to have the right kidney removed on Thursday 7th November. I am under the Royal Free in Hampstead, London, and the surgeon is Mr Axel Bex.
Needless to say, I am nervous as hell, and quite frightened.
All this has happened so fast I don't think I've had time to digest it all.
So far, little has been said about after the op, and ongoing treatment etc., although he did mention immunotherapy and not chemo. I'm not sure.
Sorry for the long post, I just need to get it off my chest.
No, no , listen to what your medical team says, not some random verbose guy on the forum! When you originally wrote that you had a thrombus in the renal vein I assumed that meant you’d have to have open surgery, as I’d had to with a thrombus in the vena cava. But no! And I’m delighted to be contradicted. In on Thursday and home at some point on the weekend, that’s a pretty smart turn around. (Looks like I’ve got some reading about the daVinci robot to do.)
Anyway, we wish you the very best for Thursday, all of us, I’m sure. You have an interesting week ahead of you and when you feel able to we’d like to hear how it went and how you are.
-Mark
