Hi, Still recovering from a nephrectomy and lymph node dissection on the 23rd May, biopsies say kidney tumour cancerous and some of the lymph nodes removed also affected, I had another CT scan on Saturday for oncology to decide if any further treatment...
Tl:dr I have a 4cm hole underneath my wound, does anyone have experience? How long does it take to heal and how long before it stops discharging gunk? Quite a week I had the staples out on the Monday, the nurse commented the large one looked rather...
Hi all Just back from seeing my oncologist. Good news just the met in my boob and a 2cm x 2cm patch on pelvis. I have called them pea and peanut after their sizes. I am as fit as a flea fortunately and have been given a number of different treatments...
Hello everyone, I thought that it was about time I updated everyone. I started on my second line medication as I told you last time, Lenvatanib and Everolimus. Unfortunately this treatment did not work the tumours continued to grow and I suffered...
Hi everyone just an update I am at last on the waiting list to have my kidney removed and then start my dialysis after being diagnosed in early February it’s been a long wait to get to this point I am having my pre op next week and surgery expected...
So had my appointment with Oncology this morning. They confirmed the renal Cancer but that it has also spread to my bones, specifically my spine. Feel numb to be honest and lots to ponder. Thankyou all for the messages you've sent. Stu.
So Uro- oncology had MDT today. Upshot is that cancer is also in my lungs. Next steps are renal biopsy then TKI.. And to cap this week off I've had my first ever UTI since Sunday.... absolute agony but hopefully antibiotics will kick in soon. Hope...
I’m in the countdown to my nephrectomy - 14 July and I’m eager to get the damn thing out. This is not my first time under the knife. Back in 82, as a teenager, I suffered from bilateral pneumothorax which were treated by open pleurectomy. Luckily these...
Hi all any of you have had any reaction to Avelumab infusion immunotherapy please? My husband was on his 2nd treatment today but have had a reaction… shortness of breath and fainted… infusion was stop straight away and was given another dose of antihistamine...
So I have my appointment with consultant tomorrow to get prognosis. Not going to lie am rather nervous. Absolute confirmed coward when it comes to hospitals and have convinced myself of a worst case scenario. Don't know how I feel about potential surgery...
