Update on diagnosis following surgery

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Whew am I glad I had this lesion removed when I did!

I have been under active surveillance for two years. Constantly showing as a 2.7cm on the regular scans. Hadn't changed at all in size or form in the scans.

I know that scans often cannot get the exact info as it can depend on things like angles etc. and invariably it seems that the final size when removed, tends to be  bit bigger than what is seen on the scan. I also am not a gambler and having already had one cancer, I didn't fancy my chances of being in the 10-15% of people for whom a Bosniak 4 is benign. 

So today I have unexpectedly (although admittedly it has been two weeks today already) received a letter from my consultant, the main body of it being:

"The analysis is now back from the laboratory after the operation to remove the lesion from your kidney. This has confirmed a small 3.3cm low grade ( grade 2) early stage pT1a clear cell renal cell carcinoma. This is the most common type of kidney cancer. There are no concerning features on the histological analysis, and it has been completely removed with clear surgical margins which is excellent news.

 This puts you in the lowest group risk group with possible for ever having a recurrence you should consider this a curative treatment.
I hope you find this reassuring and we will be able to go through the details further when we meet up in the clinic in due course. We will still arrange some follow-up scans and I hope you are continuing to make a good recovery from surgery."...
The fact it was bigger than all the scans showed, and that it is a Grade 2 not a Grade 1, concerned me slightly, but everything else is indeed reassuring, and I feel very, very fortunate to have this result. It could have been an awful lot worse, and definitely would likely have been had I waited another six months/another year. I was always afraid that at my next scan, it would show it had grown. Well, it has indeed grown but would possibly have grown even more if I had waited longer. 
Had this not been discovered by chance on a pre-op hysterectomy scan, I could have gone another ten years or more without symptoms, and then been knocked with something like total removal and worse once symptoms started to show.
Despite finding out it actually was cancer after all, I feel immense relief because his letter is so reassuring. They don't always say as bluntly as this that the treatment is curative (as, they cannot always be sure that it is) so that in itself is reassuring. Ok it may recur at some stage in my life but I still feel like I've dodged a bullet and I can now get on with my life. I am an advocate of Positive Thinking (although sometimes I don't always manage it) and apart from regular scans I can now forget about it and look ahead to the future, which I feel privileged to have been given potentially lots of.
I know so many people here are not as fortunate. CryHugging However, for those of you on a similar path as mine, I hope you too will have a great outcome. We are fortunate in that RCC is deemed to be a slow growing cancer, unlike most, so that gives us all a good chance, at pretty much any stage, and allows for delays in getting through the system, to be likely less harmful to us than they might be to someone with a different kind of cancer.
Wishing everyone a good day, a comfortable day, a positive day. Hugging
  • That is amazing news Smiley...like u said u can get on with your life in a normal way now.

    Now you need to keep healing. Remember slow and steady..

    Sending u a huge hug

  • Thank you Fleabane! HuggingHugging

    I do struggle on the "slow and steady" side of things...and I did seem to recover quicker when I had my hysterectomy...but I keep reminding myself this is a very different surgery in a different part of my body. Plus I am two years older, and few if any of us ever get fitter the older we get! 

    The fridge and freezer are stocked full, and my box of unread books and unwatched DVDs to hand for when I run out of catch-up things to watch on TV Joy so I am sitting tight, locking myself down and waiting it out, with as much rest as I can force myself to take! 

  • Trust me ..slow and steady....my local friend had an op for breast cancer 4 weeks ago. She never stops. I said don't drive, don't supermarket shop, no heavy lifting...day 2 and she was in no pain so she carried on as normal....she messaged me today, wound is leaking, which told is normal, she's been sick and in great pain and in bed for 2 days on antibiotics... I did advise her to take it steady...

    So relax and enjoy the rest of your time off work...no more cares and worries about your results...just enjoy 

    Hugs

  • Confounded This is me normally...you can't hold me down!! However, I was ever so good after my hysterectomy and I didn't even sit in the car until about a week later, making sure I could do an emergency stop but I wasn't even driving, just sitting in the driver's seat. I planned to start actual driving after two weeks, even though I felt really good long before, but I made the mistake of asking my Insurance company, as I'd read that was what I had to do. They said, ask your consultant. By the time I got to my consultant he had gone on holiday for a week! So I ended up actually not driving for pretty much three weeks in total, and was going spare!! This time I am so well stocked up in my freezer that I really don't need anything until I've run that down and can open the door again without everything falling out Joy...I need a few things like eggs and bananas and the TV mag. My neighbour will get me those from Sainsbury's. I can make do otherwise on canned and frozen as I was stocking up with cans as well once I knew this surgery was imminent, so I might have to forego my fresh raspberries for a while but have cans of peaches and apricots instead. 

    I'm sorry your friend didn't listen to you. It's very hard when someone is active and not used to being locked down when not in pain. I feel for her. However, I am having to see this as a Lockdown which everyone else had five years ago and I didn't get my Lockdown as I was working two key worker jobs throughout. I felt cheated as I would have loved all that time off work and being paid for it too! (Furlough). So now I am getting "my Lockdown" and that's helping me to cope with the enforced inactivity. (The same as 2023 when I had my hysterectomy - I told myself it was my chance to finally have my Lockdown!!)

    Hopefully your friend will feel better very soon but this just goes to prove that getting back to normal too soon, even if you feel totally fine, is likely to set your healing back longer than it would have been Worried