Just wondering like my gross haematuria seems to be a common symptom for this disease but always an advanced one . Is there anyone on here that had gross haematuria but didn’t go right into a stage 4 diagnosis ? Thanks
Sorry, you must have misunderstood! I stopped having my immunotherapy in September. My cancer has been successfully controlled by it, and I am having regular scans to monitor this. So far, so good! My cancer is 'dormant' now. The immunotherapy continues to work even after you stop having it, but I'm not sure for how long.
I am still taking steroids, and will have to do this for ever. This is also monitored by my GP, and very occasionally by my endocrine doctor.
