So following my nephrectomy (clear cell renal cancer), and the follow up with the oncologist, I was told I'm in the intermediate risk group, since the mass they removed had infiltrated my left renal vein a lot but hadn't breached, but I likely had those pesky cells flowing round my system, I had all the discussions about pros and cons, surveillance or immunotherapy/chemo, I told the oncologist flat out I was doing immunotherapy, I have read the literature, I'm as ready for this as I can be (am totally not but what the hell am I gonna do otherwise !!!). First immunotherapy session went ok, though they had a hell of a time getting access to a vein, finally got one though, but my nurse who was wonderful said he would put in paperwork in case i may need a port as my veins weren't playing nice.
I'm due to get my next immunotherapy session in a couple of weeks and am fully expecting the side effects to kick in on that or the third one, but I have found I'm having trouble sleeping, am 3 months post surgery so I don't know if its from that, subconscious anxiety or what, I am pretty up beat most days though have days where I am crying a lot, I don't drive and have issues getting out and about socially due to past trauma (domestic violence, I am safe now), I've been sent invites for meetings and such but they're too far away for me to get to and there's nothing local for me to even attempt trying.
I have my family around me but they have their own troubles and they're not coping with me having cancer, and I'm kind of stuck as to who to talk to, I have called my CNS a couple of times but she was unavailable and I didn't want to keep calling being a bother.
So I'm currently trying to meditate and focus on the positives and possibilities on my own, but I would really love some input from people who are on the same path fighting cancer.
