Recently had my Nephrectomy

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After only being diagnosed with Kidney cancer about four weeks ago I'm amazed just how quickly my operation to have my left kidney removed has been carried out, I had my op on the 6th of March. Apparently the operation was a success (it was carried out robotically) and the only thing the surgeon mentioned was that the cyst on my kidney burst inside me as they where actually removing the kidney from my body. I am more than a little concerned by this but my surgeon didn't seem to give it a second thought. After surgery I was told that the operation required them to fill my abdomen up with Co2 gas to give them more room to work and that this should pass normally from my body over the next few days. When I woke from surgery in the recovery room I was on a drip for fluids and also Morphine, this was removed the following day and I was instead given oral medication (paracetamol and oral morphine), other than being told how often I could have it I wasn't given any other instructions. Two days later I was discharged to come home and was in agonizing pain,by Thursday it was intolerable and I rang a local chemists to see if there was anything I could take besides my morphine/paracetamol to help get rid of the gas that was causing the bloating and  excruciating pain. I was told that the morphine was the cause of the gas not being released as it was 'bunging me up', (I had called the hospital first but I was just told that as I had been discharged I should go to a walk in center if I needed any help) I decided to stop using the morphine, the following day things began to ease off. By Friday I could finally eat again (I'd barely eaten all week and I lost nearly a stone in weight). If I'd been told by the hospital about the effects of morphine I would have just tried to get by with the paracetamol and probably saved myself a weeks worth of pain and suffering.

Anyone going in for the op please bear this in mind after surgery, the actual pain from the surgery isn't that bad, I'm only a week on and I'm feeling loads better, I can eat , and almost sleep normally again. I am seriously considering lodging a complaint with the hospital however as my aftercare has been nothing short of disgraceful with staff who didn't seem remotely interested in my needs after such a big operation ( I had to beg for pain killers at times and get out of bed to go do this). The catheter which I had been dreading wasn't even worth worrying about, it was fitted while I was asleep and removing it was only seconds of a job that didn't hurt at all.

  • Sorry to hear you had such a rough time Tomcat. Mine (radical right kidney) wasn’t so bad honestly….biggest problem I had was almost unbearable constipation! 

    And yep, the catheter is more scary than anything so I’m glad that part went smoothly haha

  • I also suffered bad constipation (and still am a little) this was mainly down to a lack of advice from the hospital staff, if I'd been warned of the side effects of morphine I would probably have tried to do without it.

    Waiting for my energy to get back to normal is my current concern, I can only last a few hours before needing to rest again.,

  • Normally nurses give a peppermint concoction for gas pain. Just ask. A good surgeon will evacuate most of the gas before closing up anyway.

  • I was given a peppermint tea earlier in the day but sadly this hadn't really helped. At the end of the day the surgeon probably did his job as well as he could, I was let down by the staff on the ward I was on, a little advice and I could have been spared a hell of a lot of pain.

  • GPS seem to provide very little post surgery support.

  • The hard part is over buddy, wishing you a speedy recovery! Sorry to hear you had a rough go of it during your stay in hospital. In my experience, most health care professionals are really very good. But there will always be one or two bad eggs in the bunch. I would push forward with the complaint though, if anything, just to raise the issue, so that maybe it can be addressed, so that others don’t have the same experience.

    If your still having probs with constipation, ask your GP for Senna and Dioctyl. Helps me, and I'm on morphine and paracetamol daily.

  • Just joined this forum and so glad I did. I’ve been diagnosed with a very small 1.8cm tumour in my right kidney. Found by accident and now transpires it was there a year ago in another scan and hasn’t changed size at all. I have been worried sick about everything but most importantly about the use of a catheter during and post surgery. So glad I came across your post and your comment about the catheter will make me sleep better at night. 

    My MDT team at Royal Marsden have been amazing. Going to finally meet the surgeon in two weeks for a discussion around how best to remove this or do we go down the active surveillance route. 

    Must admit I am confused as to what to do as it seems I will have a choice to make. I am a 53 years old man, scared of needles and anything medical along with what this means going forward

    So glad I found this forum and will have access to folks who have been through this for support and guidance 

    Best of luck to everyone and I pray for your quick recoveries and good health 

  • You're the same age as me and mine was found accidentally during an MRI scan on my back, although I've had my left kidney removed (it had a 9cm cyst on it) I also have a very small one on my right kidney,  at the moment they've told me that they're just going to keep an eye on it with six monthly checks to see if it's growing or not so I wouldn't be too concerned about yours at the minute, they may do the same with that.

  • Hi JF999, and welcome.

    You've definitely found the right place, really great, friendly, and very helpfull bunch of people here. It's not a club any of us wanted to be in, but here we are. Yeah the Catheter, is one of those things that many worry about and then after find themslves saying, "I don't know why I was so worried", it wasn't that bad at all.

    Let them know about your fears, and they will walk you through everything. Your fears are real, and so long as they do know this, they will take the extra time to reassure you. Same goes for needles.

    The one thing that may help to reassure you a little is that, Kidney tumours are notoriously slow growing, and it's very  good that yours has not grown in that time.

    We are all here for each other.

    Good luck!

  • Thanks Tomcat. Much appreciated and hearing from members of this forum feels more real than friends and family trying to reassure me. I slept better last night knowing I have found this group