I'm new here so hello everyone.
After being diagnosed with a rare type of Kidney Cancer last year November (Translocater), I had a full Nephroctomy last year December with 5 lymph nodes removed in the process.
One of the lymph nodes could not be removed as it's so close to my artery and the surgeons deem it a high risk operation. It has since increased in size without spreading (5.2cms) and my treatment has switched from Nivomulab to Cabozantinib as Nivomulab has been unsuccessful.
Has anyone been in the same or similar situation with successful treatment or surgery here or abroad.
Very interested in hearing from you. Please help.
Hi there, I don't have any feedback for you I'm afraid, but replying to boost your post. I hope you find someone.
Hi Erchie, I had a radical nephrectomy ( the whole kidney removed) about 6 months ago. I had my wounds glued so only internal stitches-
fFor me the waiting was the worst part. To be honest I personally found the op no where near as bad as I thought it would be. My dad was admitted to hospital and I went to visit him 4 days after my op.
This whole kidney cancer situation comes as a huge shock to us all and so it’s really good you posting on here to talk with us all.
Take care and let us know how you are doing.
Best wishes Jules x
Hi I have had my right kidney removed,and also and started with the same treatments as you immunotherapy treatment but that hasn’t worked , since then approximately a month ago I started taking cabometyx 60 mg tablet each day . It has difficult side effects sore hands Tiredness, and diohrea . I have stage 4 cancer and this is palliative treatment , so hopefully this will extend my life
I have had a full Nephroctomy in November and as far as we know it went to plan I have had a few side effects but was ok to leave after 3 nights in the hospital I hope you get it sorted mate !
All the best