Immunotherapy and targeted treatment

Are you going on nivolumab with illumimab? Probably spelt those wrong, interested to know what targeted therapy you will be going on 

good luck 

I've just had a look at the paperwork. It's Avelumab and Aitinib. 

Good luck with you proposed treatment, I had a different immunotherapy for a different cancer (peritoneal mesothelioma) a few years ago, no side effects and thankfully put me into remission hopefully your treatment  will do the same for you️

Many thanks. It's my husband having the treatment.  Glad your treatment  was successful.

I had my own cancer treatment in 2014 as I had thyroid cancer. 

Ok good luck to him

Hi Allyson

I'm on immunotherapy (ipi/nivo) and it takes 2-4 hours.  I think axitinib is a tablet you take at home.  So, that would mean only Avelumab is given via IV so it would be on the shorter side of that estimation.   

When I started IV treatment they suggested I get picked up on the first occasion to see how I responded.  But in my experience most are able to drive themselves there and back and the treatment is non-impactful.  

One of the nurses at my unit shared that people generally tolerate immunotherapy well, better than chemo.  But it's difficult to say as everyone's response is unique.  

Being sleepy on the sofa in the evening afterwards is completely normal.  Especially after the first time.  I'm 7 months in, and I don't get that any more.

Good luck!  

That's really helpful. 

Hubby falls asleep on the sofa regularly. So that would be no change!

Forgot to say, on your first visit you get sent to ECG for a trace before you start treatment.  So add on 20-30 mins for that. 

Hi there. My husband is on Avelumab and Axitinib. He doesn’t drive himself to the infusion appointment because he just feels so tired afterwards and he has to have antihistamine to prevent allergic reaction during the infusion, which also makes him tired. I guess it’s on the advice of each consultant. 
Generally, he is at the hospital about 4 hours for his infusion.

We have seen good results on this treatment, side effects are a bit rough but manageable, but everyone has different experience. 

Good luck

Many thanks for that. It's the kind of questions that you forget to ask when you're in the appointment.  

How long has your husband been on the treatment? 

Allyson