Diagnosed 5 weeks ago with IBC triple negative

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Hi all I was told 5 weeks ago that I had triple negative IBC. I have been put through the mill in the last few weeks what with click biopsies taken from my breast, mammogram, skin biopsy, bone scan, lymph node biopsy and and still have ct/mri scans to go. I am hoping that I get to see the oncologist soon and get a plan of action. The pain in my breast never stops it's like I've been burned. I can not sleep because if I lie on the one side it feels like I have a huge weight weighing me down if I lie on the other I get sever pain in the middle of my chest and if I lie on ky back I can not breathe. Have been feeling very lonely and isolated as I could not find anybody on some other forums that had IBC. One of the nurses told me about this forum and after reading some of your posts I don't feel so isolated as I can relate x