Diagnosed 5 weeks ago with IBC triple negative

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Hi all I was told 5 weeks ago that I had triple negative IBC. I have been put through the mill in the last few weeks what with click biopsies taken from my breast, mammogram, skin biopsy, bone scan, lymph node biopsy and and still have ct/mri scans to go. I am hoping that I get to see the oncologist soon and get a plan of action. The pain in my breast never stops it's like I've been burned. I can not sleep because if I lie on the one side it feels like I have a huge weight weighing me down if I lie on the other I get sever pain in the middle of my chest and if I lie on ky back I can not breathe. Have been feeling very lonely and isolated as I could not find anybody on some other forums that had IBC. One of the nurses told me about this forum and after reading some of your posts I don't feel so isolated as I can relate x

  • Hi Birds

    Welcome to the forum and I am sorry to hear that you have been diagnosed with triple negative IBC and that you are having trouble sleeping because of breast pain.  Have you talked to your breast care nurse about the pain you are feeling?  They may be able to suggest something for you to take for the pain.

    Hopefully you'll feel better soon.

    Wishing you the best of luck with whatever treatment you'll be having.

    Best wishes

    Daisy53

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