Disappointment with a dash of dread

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Hello everyone. 

I had a very large DCIS last year & as a consequence had two thirds of my left breast removed, followed by a week of Radiotherapy.  Now I have a left pink breast, 3 patches of thickened skin & two of those patches also have orange peel.  So, all in all a pretty bleak set of symptoms. 

I have seen my GP, who immediately referred me back to the breast clinic - I'd only finished last of my out-patient appointment from the DCIS treatment 3 weeks previously.  And now here I am again on the roundabout of apprehension, doom & 100's of miles of travel (it's fair to say I live in a rural area). 

On the plus side, I did get my hospital appointment letter today (it's for 10 days time) & they do state the appointment could last 2-3 hours, so it seems likely there will be a fair amount of prodding, poking, squeezing & blood letting going on again. 

I'm really struggling this time, as it would appear the cancer has not only come back, but back so fast & likely a worse type.

I've always been unlucky ................. but. c'mon Karma, give me a break.

  • Hi DIY fanatic welcome to the forum. My Cancer was Lobular but my after symptoms were exactly as you described but It was not a recurrence but Lymphodema in my breast for which I had treatment. Is it possible thats what could be happening for you because it certainly sound like it to  me and I hope than it turns out to be that for you and not recurrence. 

    gail

     
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  • Hi Gail,

    Thank you for replying.  You are the first person who's mentioned a different reason for my symptoms, so that certainly does give me something to hope for, at least for the next few weeks, until I have had my 27/02/23 out-patient & test barrage, with likely test results a week later.

    Last time I had a Friday appointment of mammogram & core biopsy, with the out-patient results appointment & blood tests the following Friday.

    When you had your second symptom occurrence, did you feel that rather than your cancer being over, you may be on the scare/referral/tests/results merry-go-round for life?

    Tina