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Hello out there.Hope everyone is trying to do there best with coping and living with cancer. I was treated for predominant nodular Hodgkin’s lymphoma back in 2014. I had radiotherapy and I went into complete remission. I met a guy called Jonny at a Macmillan...
Hello, I have been diagnosed with NHL stage 2, and my consultant has suggested a course of R-CVP,is there anyone in this community that has had this form of treatment that would be willing to tell me of their experiences, and how they have, or have not...
Hello all, I have joined the group as my Dad has lymphoma and I've been helping him through the first few months after diagnosis. We are not happy with the level of care he has received at his current hospital and want to transfer. It would be great to...
Hi All, Another addition to the group. I have been diagnosed with Hodgkin Lymphoma (Stage 1) about 3 weeks ago and due to have my first treatment next week. I have been advised of having 2 to 4 cycles of chemo followed by radiotherapy. I am seeing...
My son was diagnosed with rhabdosarcoma wrong dx burkitts lymphoma His mass was growing around his fermur artery. He went to emerg rooms with hip pain, back pain, leg pain got ignored everywhere. When his right leg started to swell and in extreme pain...
My husband was diagnosed with nodular predominant hodgkins lymphoma in 2015. He had a small critical illness insurance which paid out. We are now trying to get a life insurance set up and noone seems to want to touch him. Has anyone found any insurance...
Hello all, I’m hoping for some advice/ other people’s experiences. I was diagnosed with stage 3B HL in June 21. I had 2 cycles of AVBD then scanned, the scan didn’t how enough response. I then had 2 cycles of BEACOPP, same again scan didn’t show...
Latest update 7 Dec 2021 Hiya, Latest on my radiotherapy experience – last time I posted I’d had 4 radiotherapy treatments on the side of my neck, each one approx. 2gy each. These have continued, and … today was last one! ..yah!! Looking back...
Hi, this is just to post to say how it's been going so far with my radiotherapy treatments . I've now had 4 treatments ( 2 Gy each), with the weekend gap. And so far, relatively feeling OK! Noticeable tiredness is the main effect I'm noticing, which...
Hello - me here, aged 76- mother's favourite eldest son. Autumn 2019 to May 2020 course of ABVD + radiotherapy - told cured but radiotherapist missed a dodgy node. Then began course number 2 of Brentuximab for 6 months beginning this April . Side erffects...
