Hi Friends

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Hi, my name is Victoria and I have no-one to talk to about this. I've finally registered to be able to come on here because it's gotten to the point where my anxiety is spiraling out of control. I've been reading for many years. My sister had NHL in 2018 and is doing well, in fact much better than me. This forum helped me (and her) with information - such a knowledgeable and caring bunch truly. OK so I suffer with health anxiety. I lost my Mum to complications after bowel cancer surgery when I was 20 and since then have suffered with this sometimes debilitating affliction.

Without wanting to worry my sister and without a Mum to talk to, I'm so so scared and feel alone. I'm 48 years old and going through peri-menopause. Health has always been good, contrary to what my mind tells me. I have hot flashes (not sweating) at various times throughout the day or when I panic (Is that classed as a night sweat during the day?)

For the last two weeks, I've had itching all over my body at random spots. Tips of ears, knee, toe, elbow, arm...it's like I'm following one random itch around my body. Less so when I'm not thinking about it and more so when I spend 3 hours at 3am watching TT videos after searching 'lymphoma itch'. Needless to say I am a wreck. I've taken a Zyrtec every day until my drs appt at 12pm tomorrow. It's been a long eleven days waiting for this appointment. LONG. Trying to concentrate on work and always creeping back to my phone, desperate for one website that will say 'lymphoma itch is nothing like that'. Instead I find the itch can be in one or two spots, or all over. Ok great!

I know you are all going through your own challenges but please can anyone shed any light on the 'itch'. Mine is like a bug bite, or when you have dust on you. One itch and it's gone, sometimes to another spot. No blood, no lumps, no rash and no other symptoms.

I did take half a serepax today and the itching has slowed or not as noticeable. Placebo? perhaps.


Please any advice would be greatly received... I don't want to worry my sister and I could do with a friend or two.

Thank you, ever so much.

  • Good morning Victoria - thanks for the hugs and hot cup of tea which is awaiting me when I finish this message.

    If I were you, I would be in contact with the Clinical Nurse Specialist(s) at your local cancer care hospital to try to get answers to your question(s). Not only are they cancer specialists (which i guess your GP isn't) but they understand and know the diagnostic/treatment regime insideout which pertains in your geographical area. I repeat, they are your allies. Use 'em.

    All the best- your cuppa awaits - hugs,

    Pete X

  • Thanks, Mike. That certainly makes sense. My CT scan was abdominal so I'm not sure if it goes higher on the body than the stomach.

    Another big fear is that I'm going to be living n fear for years just waiting for the C bomb to drop. Mentally draining.

    Hope you have a lovely day.

    Blue heart

  • Thanks, Pete.... I hope you enjoy your cuppa. 

    And you are right... my Dr didn't realise itching was a symptom of Lymphoma. Sigh

    V x

  • Victoria- a further thought - is there a Maggies Centre nearby? If so they could not only offer emotional individual and group support but knowledge. When I lived near Oxford I found them invaluable.

    Pete (+hugs)

    X

  • I'm not too sure, Pete! Thank you for the recommendation. Will have a little scout around now. 

    Have a lovely day xx

  • Check to see if you have any Local Macmillan Support in your area and this link will take you to the Maggie's Centre information that Pete highlighted..

    Mike (Thehighlander)

    It always seems impossible until its done - Nelson Mandela

    Community Champion Badge

  • Thank you so much for your and Pete's kindness. Im so so appreciative x

  • Well, I'm back. Still on this itching journey. Xray was clear, CT scans are clear, bloods are fine. Came up high on the histamine with an allergy to dust mites and pollen... which most people probably have. Low on iron and suggested tablets. He gave me a referral to a Haemo but said they will be wondering why he referred me as he has done everything he thinks he can and not sure it warrants it. Also gave me a prescription for anti anxiety meds to see if that helps the itching.

    So my Hanxiety (health anxiety) has left me with more questions than answers. Is it cancer, is it MS, is it a brain tumour... I never go to the less dire things such as allergies. 

    Equal parts frustrating, scary and sad.

    Hope you are all well on your journeys ((HUGS))

  • Good morning   so this can only be seen as a positive move that you have been referred to Heamatology as this at least will get you a different set of eyes to check you over for the possibility that this is Lymohoma as they are the experts in this field.

    In the meantime make sure you have made up a list of your history with regard's to all that has been happening with your skin, with approximate dates, stress triggers and a list of the meds that have been using.

    The diagnosis process at times is like making a jigsaw but you don’t get to see the picture and only a few of pieces are turned so you can see a very small part of the picture the rest of the pieces are sitting with the blank dude up!!!!! 

    Let’s look for your appointment to come soon and the most important thing is stay away from searching for answers on Google as all this will do is increase your anxiety…… anyways around to chat ((hugs))

    Mike (Thehighlander)

    It always seems impossible until its done - Nelson Mandela

    Community Champion Badge

  • Good morning Victoria - If there was a medal for waiting/pondering then those of us with HL typre cancers would be medallists every day. I describe myself having PBS. Pimple on the Bum Syndrome. Pimple on the bum = left leg dropping off. If you could crack anxiety then you could make a fortune (then you would worry how to spend the millions).

    The Highlander is right in that you are being directed to an expert but, guess what, you have to wait.