Hi folks,
36 year old dad of two here who is just about to commence his treatment. I am on here to share experiences and both gain and give support to others where I can.
On new years 2021, I noticed a lump on my neck, above the collar bone. I also had the most annoying itch on my legs, which I experienced since late summer 2020 that nothing used could stop. I went to the GP who saw me as soon as I mentioned the itch on the second week of January. I was then sent for a number of tests and was diagnosed with lymphoma the last day of January. I then received my first covid jab the following week and had further tests the remaining February.
I am currently stage 2, although 3 weeks would have passed since my PET scan and when my treatment begins in March. I am currently scheduled for 3 cycles of ABVD and then another PET scan. From here it will either be more ABVD or moving on to radiotherapy.
As my children are young and I do not want them to miss any more education, they are to move out next week with my wife and I am tackle this mainly on my own, with my wife coming in daily for support but taking appropriate measures due to Covid. I will continue working from home but other than that I will have plenty of time for emails, texts and calls for people in a similar situation.
Thank you for taking out time to read this and thank you in advance for any support and guidance given, which is very much appreciated.
K
A few tips, apart from ensuring you get contact details of your specialist nurse, of course.....
drink plenty of water, it helps flush the dying cells through and helps towards preventing one of the pesky side effects of ABVD, sorry, tmi coming here; constipation! (Don’t ignore that should it get you!)
if the antinausea meds they choose for you don’t work, tell them swiftly so they can help. Nobody should feel too awful at any stage of this. The very best is Emend/Aprepitant but it isn’t cheap so may not be the one they try to begin with. I understand it needs taking about an hour before treatment starts.
if you find any of the drugs stings your veins as it goes in (think it’s either the ‘V’ or the ‘D’ can’t remember) ask that they slow it down and increase the carrying fluid, normally saline. If your hand veins aren’t easy and they suggest a PICC line, it can significantly cut your time in the hospital.
Use a notebook to jot down questions, side effects, etc and take it with you each time. The nurses will find it helps them to help you.
invest in a thermometer and do a daily temp check, your nurse will tell you what their ‘phone in’ temperature is, as infections (not common) do need acting on fast, and a raised temp is the quickest sign.
Hope you sail through like many do!
Hugs xxx
Moomy
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