I was diagnosed Feb 2019 with stage 4 NHL, several enlarged lymph nodes, an enlarged spleen and also in my bone marrow. This was an awful time lots of tests and tears. My specialist team decided the best action was to watch and wait with blood tests and consultations every 12wks. Over tge tge past 2 yrs I've had plenty of different scans etc and have managed to cope quite well, my main issue has been fatigue but now everything has turned upside down again as I found out yesterday its spread to my eye socket and I am now looking at treatment. It hasn't really sunk in yet but I'm starting to feel scared and haven't slept all night. I'm now waiting to hear back from my haemotolgist.
Hi Izzywoo and welcome to the community but sorry to hear about your journey.
This is our Hodgkin’s Lymphoma Group but you mention that you have been diagnosed with Non Hodgkin’s Lymphoma. Although both Lymphoma , HL is rather different from NHL.
So could you join our dedicated Non-Hodgkin lymphoma group. To join a group just click on the link above then choose 'click to join' or 'join' (depending on the device you're using) on the page that opens.
Then you can introduce yourself by putting up a ‘New Thread’, you could just copy and paste the text from this your first post.
I was diagnosed with NHL back in 1999 so do understand the NHL rollercoaster and the folks on the NHL group are there to help you navigate this journey with you ((hugs))
