Recently diagnosed

FormerMember
FormerMember
  • 3289 replies
  • 19 subscribers
  • 1094339 views

Hello

I was diagnosed on NYE with Hodgkins and will be having a biopsy tomorrow.

I'm obviously scared and frightened, alongside the heady concoction of denial (it doesn't feel like it's me), sadness, hope (it's really treatable and the success rate is high), attempts to distract myself and confusion. .

How did you guys find dealing with the bit before you find out the extent of everything? I mean, I don't know what stage it's at or anything  so it's a bit of a daunting question if I look over it. What happens after the biopsy?

Sorry, so many questions... just thought it'd be nice to find people who also went through the same.

Thank you so much in advance

Tom

  • FormerMember
    FormerMember in reply to Krazy

    Mark - Over the moon for you lovely! I hope you're tucking into a few pints of guiness! haha

  • FormerMember
    FormerMember

    That is the best news Mark! So so happy for you xx 

  • FormerMember
    FormerMember in reply to FormerMember

    Krazy - thanks! - yeh, any little bit of upset during treatment, with it all... - absolutely threw me to pieces!- I'm an aweful lot clearer headed about it all now... but, whilst its going on; I know !

    Cezza
     - Lreayd had two pints on way home from hospital! - just had goat curry with peas n rice! - back off to pub in a moment!; yeh... - the endocrine stuff is gona take ages to get sorted, but least that might be easier now, the oncology is seemingly all out of the way (OK, so I'm still kinda a bit anxios that the MRI of the pituitary might show cancer, but... hey how, I now what happens now if it does at least!)

  • FormerMember
    FormerMember in reply to FormerMember

    Wonderful wonderful news Mark!!!!

  • FormerMember
    FormerMember in reply to FormerMember

    Brilliant news, Mark!

    Just hope everything else sorts itself out reasonably quickly and none of the other concerns come to anything. I reckon you're due a bit of a break...

    Ian

  • Good to hear you are in the clear with the Hodge Mark, lets hope the others get sorted too, you should get 3 monthly checks for the next year at least.

    sure the celebrations will continue! hic !

    we all know this is a roller coaster ride, where we ride blind, never knowing where the highs and lows are
  • FormerMember
    FormerMember in reply to FormerMember

    Woohoo Mark!!  Fantastic news....really pleased for you....Dx

  • Way hay, Mark, really really pleased that after all your worry recently, the beast is gone! Yes! 

    Hugs to you all, busy and tired.....

    xxx

    Moomy

  • Clare, peripheral neuropathy does improve, but gradually and maybe not completely, however it sounds as if yours is Raynauds syndrome, when fingers turn fairly suddenly completely white and numb. My mother had that with no cancer treatment, she just used to prevent her hands getting cold if at all possible. 

    Hugs xxx

    Moomy

  • FormerMember
    FormerMember in reply to FormerMember

    Thanks all! - Was jut thinking about tings earlier; actually, as I had the 'complete remission' intermediate PET, this 'remivssion' today, strickly speaking means I've been in remission now, for six months! - Which does rahter make me furrow my forehead, and contemplate quite why I feel so much worse now than I did six months ago! - yeh... yeh... culmination of the RT adn chemo in my system, plus all the weird and wonderful strangeness with my endocrine stuff.... - Must try focus more now on getting fit again, loosing weight, and hopfully just finish sorting out this endocrine stuff as much as possible; yeh; the Dr today said about three monthly checkups, so hopeing they''ll actually do that; plus of course, have this PET they'r etalking about for the end of the year; once the armpit has settled more, post this infection, and scarring etc; to basically get a 'new normal' picture, of what its like, for any possible future scans to have a background 'normal' to compare to/against.... - Hopeing I can try get physical fitness back, and also hoping my brain/mind can settle a bit more back to functioning properly; Dr basically told me I'm stuck with the neuropathy, and the lack of coordination/balance/spatial awareness (that's due to the nerve dammage too, which in most people ain't probably so noticible, but as I've no sight I'm more relieent on feedback from nerve impulses in arms, hands etc, to guage spatial awareness)... - too tired to have celibrated as such... but did have another three pints tonight in the pub, on top of the two this afternoon on way home from hospital... and may open a can now... - mind, not like I really ever totally stopped rinking much, during chemo or RT... - but I doubt I'll ever quite return to my excesses of drinking... hmm... err, yeh, OK so 5 or more pints today isn't exactly nothing but... sod it...