Recently diagnosed

Thanks Tom

I discussed this with my nurse who reckons it's all the drugs. Like you, they are pressure headaches. She says the chemo is making me more susceptible to everything. I noticed they got worse as the weather got hotter. 

Thanks for your advise - eased my mind a bit now! 

Cheers

Cezza

Hi folks all, 

headaches? Yes, daughter got them too....you might try gently massaging your head, especially towards back of neck? 

hair? Yes, baby like, it might take a while (months) but your hair will naturally get back to its norm. 

Glad the finger is getting there Phil...

Tom, I had a read, you are a good writer, it starts slightly oddly but soon gets into the swing. 

Hugs xxx

Happy birthday to you, happy birthday to you, happy birthday dear Phil, happy birthday to you!

Have an amazing day tomorrow, glad you getting your pub visit and rare steak in on your birthday.

Tom really like the first chapter, love the way you write. Like Moomy, think it works better after the first section I get what you are trying to do but it doesn't flow into NYE easily, think you should keep the belt in though just might need a bit of reworking. Hope you meant it when you asked what we thought. I think it is fab though, as I have said to you before you write beautifully. Xxx

Cezza, how is the head feeling? I have had a couple of headaches during and since chemo, it is something I don't usually suffer with so think it must be chemo related.

Been in school this morning to catch up with the kids, they were all fab, some were a little freaked out by my hair and I had to keep popping in to the little one's room then out quick until they got used to it. One of the boys, who is very bright, was fascinated by my hair loss and we chatted about fast growing cells and cancer medicine he really 'got it'. 

Hope all are well, Tom think you have CT scan soon? I have my final PET this Friday and results next Wed eek.

love Jakki xxx

Hello, aww that's so nice. Thank you all! Yes the segue is probably deserving of a little work. Easily fixed I think if I make explicit the link between where I was on the bus and royal London hospital...

Jakki I'm sure you'll be fine! I am having an ultrasound, not a ct, as it's a little node on my neck (again).

As per usual, let's hope it's normal. Tbh I haven't had any stories of this happening post treatment which does worry me. But I have no other symptoms, especially now the doxycycline has exited and I'm not itching outside of a normal amount. I don't even know if nodes pop up again normally! 

Sigh.. I know worrrying is no good. But it all feels like Ive bloody made it.. It's just this last little thing!!!

Tom

Hello peoples!

Glad everyone seems to be doing well

Jakki well done you for Race for Life big pat on the back! 

Happy birthday for tomorrow Phil so nice to celebrate at the end of treatment too

Tom glad things are going well for you and your lady friend. Understand the anxiety bout your scan, mines not for 2 weeks yet. Convinced myself i was dying on Saturday with random symptoms, today i feel fine again. Still got the pesky little lump tho

Cezza i got headaches too. Drink looooooads of water to help flush the nasty drugs out

Cautiously excited about my holiday next week. Hoping i can slip in the hot tub and forget all my worries...for a while at least lol

Clare

Eeek! too many messages to try remember to reply to everyone! (my chemo brain, or  whatever it is, doesn't seem to reduce).

11/15 of the radiation done today.

Tom; saliva is fine; its just swallowing that hurts so much!

Dr ignored my sore neckthroat when I mentioned it on Thursday last, at review.

Tried again today, but no Dr availible. So will try again tomorrow with same Dr who ignored it before; I'll get William to speak to him about it; as the Dr doesn't seem to pay atetntion to what I say; whereas with William, last time, the CT scan got booked in as we sat there; I've been asking about follow-up for that brain tumour possibliity since, about May I think. ONly when william asked did the Doctor pay attention.

Swallowing so painful. no medication for it though,so just, putting up with it.

Tiredness definatly growing, despite longer sleeps (decided to double the dose of tranquilisers I'm on, to get nearer 8 hours a night).

hormones and mood swings all over teh place! - on the way back today, from the   hospital, I was getting too tired so we had to stop; in a pub en-route.

I got angry with my fingers not working as I tried to fold my cane up; threw it... at the floor... oops; or, threw it straight at a  guy standing at the bar! oops!

sense of spatial awareness still shot, bashed my head so hard, a few times recently, on walls, door edges, etc; think the other day when I bashed it straight into the wall I might have got a slight concusion.

Pity they don't bother mentioning any of the side affects of cchemo I ended up getting; perlipheral neuropathy, lack of spatial awareness, inputance, female menapause despite my being male, etc., etc...

Four more days of radiation and then. No idea what. Still not had anything from Endocrinology as regards my testosterone, the hot flushes are just so horrible. and so frequent, and the mood swings are terrible, and I think its messing with my mind in other ways too; if anything chemo brain is now getting worse.

Hope everyone else is doing OK,  and surviving treatments better than I am.

Tomorrow may well be a busy day, so, the message for tomorrow is (a few hours early);

Happy Birthday to you, Happy Birthday to you, Happy Birthday dear Phil, Happy Birthday to you! 

Hope you really enjoy your day.....

Big hugs to you all on here 

xxx

Aw Mark,

Fed up post today, I can't imagine how you feel, you have been having treatment for a long time now. Only 4 rads left, perhaps things will seem a little better when you are not having to travel backwards and forwards to the hospital each day. Also maybe you can have that weekend at your dad's soon!

sending hugs

Jakki xxxx