Recently diagnosed

Awww... jakki, sorry your feeling sick, and  grumpy, and with this yukmouth (I managed to escape the yucmouth during my chemo)... - I found my final chemo, if anything... well, kinda anti-climatic! - not entirely sure what I thought should/would happen, but... - just felt so ordinary by then, it was ... just another day!; the weird day was I think two weeks later; not going in for chemo! -
 I'm way too focused on the negative still, post-chemo; residual side affects (yes, m ay vanish, may not......) - but, actually, I must be so much better now, than I was, especially at the start of my chemo, and cycle three, when I was paticularly noticing how rubbish I was! -- I guess its a bit hard to notice slight improvements, day by day, especially when some days I just drop right back down again; and my sleep is not helping at the moment... yet again!

Well... lunch eaten, adn kitchen cleaned... definatly do have more energy than I did... but with this heat today... can't decide what to do... sort of feel like I should get on, and get some stuff in the house  done...

All better today from chemo yuck mouth sick etc, that's why I'm smiling. I think you are right not going in the Thursday after next will be a milestone! We plan to have champagne this Friday with my neighbours so that will be a mini celebration. Have you packed your bag yet for your mini break? Xxx

To be honest I don't think I've the energy to pack a bag at the moment! - with this heat on top of everything my brain's so useless I'd never pack the right stuff anyhow! - I'll leave that until later tonight I think, wehn I'm more alert, and awake... For now... I might even just try see if I can go sleep, can't have slept more than a couple hours last night, and this heat is just exausting me today...  

oo! enjoy the champaign! - I used to adore champaign, years and years back, but, then I just lost the taste for it, for some perculiar reason... - and that was way way before chemo  might have affected  my sense of taste etc! - Heck even went off drinking red wine too, a few years back, but kinda wish I still liked both enough to enjoy them from time to time!

I must try pack and get ready for going away Thursday tonight though; just had a phonecall, back from the window company; they're coming in tomorrow afternoon to fix my two windows that suddenly won't open (not fun when its this hot!)- works out well, as its before the mini-break away, and before every day is tied up with radiation appointments!

ah... too damn hot to try sleep I thinkl... a cup of tea instead, then.... maybe try remember where my purple rucksack is hiding, and think about getting some packing done whilst its in my mind to do so, before I forget...

Hope everyone else is coping better with the heat than I am! - When its warm like this, I so hate living in a city, and miss being in a more rural area... - no air!

Mark, heat gets to you, doesn't it? I 'almost' close all the curtains on the sun-facing side, which of course changes through the day, and have as many fans going as we have. Still the heat is high.....

Take things slowly, trying to rush is wrong, too.....plenty of cold drinks too......

Hugs xxx

It's very hot outside, luckily my house is cool (stone built Victorian) and the cellar is very cool so we can escape the heat if we need to, it's the kind of weather where a pool is needed! 

Another couple of weeks and I'll be able to head to the open air pool, anyone any idea how long we should wait after chemo before swimming? Xxx

moomy

 - oh yes! heat has always gotten to me... - to be honest, much  above 23 degrees C, is beyond my  normal functioning temp! - now, in this sort of post-chemo pre-radiotherapy hiatus, I'm guessing I'm handling it even less well! - sadly, even my painful joints from the chemo, don't react like arthrutus; if anything they're worse with the heat too! -sweating like anything as soon as I move or go into one of the warmer rooms, (I'm in a windowless void at the moent; which is my computer room and recording studeo). - Just emtpied the bathroom bin, and threw some more unwanted items with the rubbish being collected by the countil tomorrow; up and down three flights of stairs (my house is over three floors), and in and out of a couple of rooms, and I'm exausted! = more tea brewing...

Jakki; I'd guess as soon as your not neutropenic, and once white cell counts are up a bit.. - in reality I'm not sure mine ever dropped drastically during most of my chemo; the neuts always staid above 4, which I think is plenty high enough - though I did take precautions at teh time, as if I was neutropenic; now, I've  basically relaxed them all up; oughta think about removing the alcohol hand-gel from my handbag and coats I guess, can't imagine I really need that anymore; probably useful in some ways to get my immune system back used to facing the world, in something more like a 'normal' way... - well, my thoughts on the matter anyhow; I'd guess swimming oughta be alright, if your line is gone, within a few weeks?

Think I'm going to surrender to the heat soon, and give up the idea of doing anything much useful today, during daylight hours anyhow; I think a nice cool shower, with my new dreamwash shower smoothy is called for! (and yes, probably dreamcream moisturiser afterwards....) - not entirely ruled out the idea of a bath later too... but I doubt it'll cool enough for that today...

I found my rucksack, which will be big enough for both William and my stuff, so I can get that out once the sun sets, and pack a few shirts and things... - Even remembered to order up some more hydrocortisone earlier in the week, so will pick that up tomorrow and not risk running low for a while to come... (I've been living off a extra  generous supply, I was given by the hospital, wehn I had my overnight stay; they don't limit it like the GP to just a months worth; and I've kept that in the fridge, so its hopefully remained fresh and active...) More melatonin too, although again, my sleep seems broken, entirely, even with the melatonin tablet each night... - broken sleep isn't helping much with the hydrocortisone dosing; I was feeling quite hypo, about 4 AM,  whilst laying awake in bed, trying to sleep- I could shift my last dose until later in the evening; but then that could interfer with sleep, were I to actually be able to do so, at a semi-reasonable time... - as I've reduced my dose, I've noticed more I feel better often wehn I am low on hydrocortisone, but not always so; I've a feeling the endochrine stuff I've got going on, will take a lot longer than chemo plus radiation! - still hopeful I'll eventually drop the hydrocortisone  entirely, and try kick-start my adrenals to  produce cortisole off their own back... - bit risky to try doing that now, if I entirely drop my hydrocortisone, and the adrneals don't kick in, I could drop myself into coma at the worse....- so don't need that kinda fun happening right now!

hmm. enough ponderings on my obscure pathologies.... and the weather...

hope everyone else is coping better than me!

I am not due a blood test now, wonder if I just guess where my neuts are? Lol. Guess they will do bloods at my appointment on 29th July.

Outdoor pools are great in this weather, but if I were you, I'd wait for a few weeks, Jakki.....just to be safe! 

Phil, hope all is going ok with you.....

Daughter's house is old, too, goes into the side of a hill, she even needs a bit of background heating on at times. 

Hugs xxx

Yep Moomy will give it a month I think just to be safe, very tempting though xx

Funnily enough, although I had cancelled my gym membership (only joined to use the pool) my consultant and key worker said they thought it was find to swim if I felt like it, through chemo. I was visibly shocked, and they said wryly that they were aware there were differing opinions on the matter..... I am not going to, though, not sure I will feel like it.  I also asked if I could swim in the sea and he said yes. If I wear jelly shoes as I wasn't to cut my feet.