Recently diagnosed

ps ohhh happy belated birthday Moomy :)

hope the cake was scrumptious.

Tom

hi all

had a lovely lazy day today eating cake. im now finally nearing my pre cancer weight (which is still not a lot lol) but so releived to be gaing not losing again. Got my last Pent Neb tomorrow...horray! Will be glad to see the back of them. Still patiently waiting for my PET results, wondering if i might be able to prise some info from the nurses tomorow like Tinsel managed!!

Jakki i see you mentioned Matlock youre not too far away from me in Derby. Are you being treated in Nottingham or Derby? Im under Nottingham City.

Mark i tried the Dragon egg bath bomb yesterday, was very nice once i got over the shock of crackling water from the popping candy. I was on my hands and knees looking under the bath convinced that something was cracking!!!!

Clare

Hey Phil, good luck tomorrow, can't do the same day as you but don't worry, I'lI hang in with you to the end, these young uns; no staying power.

In bed already, got to get my sleep ready to go away tomorrow night.

xx

Hi Claire 

Derby, not far at all, I am treated at Sheffield, glad you are putting some weight on, keep eating cake! Strangly I am exactly the same weight now as when I started chemo, I lose the week after chemo and put about the same on the following week.

Love Jakki xx

Just looked properly Mark and one is a bubble bar, get me the Lush expert now!

Oh no! I@ve been a bad influence now, with all this Lush products! (and having just bathed myself; with a dragons egg; yes, I love the popping  noises it makes, plus a bath melt, have such fabulus soft skin!).
Not used a bubble bar myself, until a few days back; (I guess they exist in all differnt flavours, and I'm not sure which one I had the other day); left my skin nice and soft; basically, dissolve/break up in the hot bath water, and well, it turns to bubbles! - OK... I was so in need of a good soak the day I used it; I had it in conjuction with a bath bomb too!; yeh... I know... an entire bath bomb (sakora I think), and the bubble bar crumbled in with all the extra bubbles from that! plus probably a bath melt... - I'm starting to get seriously worried, some of my baths must cost upwards of £10.... - I'm gona need this money back for beer, once I'm feeling better, the baths may have to go!

Oh... and just used  some more of the gorgeous moisturiser, which the girl in Lush gave me as a gift... its... so ... mmmm!; my hands are so bad right now, all the hand washing, this stuff is really helping I think....

ahh.

thanks everyone.
I've ... zenned myself back out this evening... I was... so.... so... still am, angry at teh doctor in the eye clinic place... - and yes, spoke to William earlier, we're gona try get back into contact with my GP (not seen him since, err, maybe January or febuary), and try get his help to get neurology back on my side, or at least wanting to talk to me, try get a CT organised to check for a hematoma, get follow up for the hemorridge or stroke I had (yes, they've not even told me which. seriously.). and try get this joined up with teh oncology/haematology and of course, Endochrinology (who I'm finally seeing, a week Friday; day after my final chemo) - Just... whilst all the chemo. hospital, infections, has been going on, I've not been able to go see GP; I occaionally need a day at home to eat, and try not to be ill by being at hospital and unbalancing medication and nutrition. but... maybe now chemo's just  about finished... yeh.. must try get back in contact with the GP.

Still astonished by the total lack of empathy from the doctor in the eye clinic, but the more I thnk of it, actually, I get an aweful lot of it, too, I think in oncology; they, just don't... 'get it'. - suddenly reminded myself of all the times they're asking me, when checking about infection, etc, and they ask if I've got a rash or... etc... is the port looking infected... - they actually don't understand what being blind means. I'm just astonished by their ... not sure if one should call it utter stupidity or  just total lack of empathy or... not sure. I find it bafeling.
Right. time for some cammemile tea now, here, and hopefully an early bed for once, and sleep; two nights, sleeping on the row!; that'll be the first time I've done that in ... about 6 or 7 days. if I can.


hope everyone else is OK, and coping - interesting reading about peoples experiences with the weight!; I just keep putting it on! (thanks the steroids I think more than anything, and of course taht I've somehow skipped the whole nausea thing entirely)

Sorry to hear about your problems Mark but I see a message here which is to stay in contact with your GP.  I see mine every 4 to 6 weeks mostly just for a progress chat but also to get repeat prescriptions, I saw him last Tuesday pointed out the lesion on my arm, he filled out the request faxed I through to the hospital and appointments were on the phone a couple of hours later making me an appointment for next week.  The problem with the support team is that they're so specialised in their specific field they don't see the wider issues, my Mac nurses encourages me to see my GP.  Must dash as I have to be in the hospital in 20 minutes.  Have a good day all.  Phil

Thinking about you Phil x