Hello
I was diagnosed on NYE with Hodgkins and will be having a biopsy tomorrow.
I'm obviously scared and frightened, alongside the heady concoction of denial (it doesn't feel like it's me), sadness, hope (it's really treatable and the success rate is high), attempts to distract myself and confusion. .
How did you guys find dealing with the bit before you find out the extent of everything? I mean, I don't know what stage it's at or anything so it's a bit of a daunting question if I look over it. What happens after the biopsy?
Sorry, so many questions... just thought it'd be nice to find people who also went through the same.
Thank you so much in advance
Tom
Moomy how's the back? Hope you are resting up!
Tom, would love to hear your poetry. BTW ages ago we recommended/ talked about good books, have just discovered Maya Angelou, have you read any of her poetry/ books? Would recommend.
Phil finger, John shoulder?
Love to all xxxxxx
Thanks Moomy & Jakki - appreciate the advice.
I spoke to the doc this morning. She said my inflammation markers are high, I'm neutrapenic so they won't let me out till I'm better. My neuts are 0.2. Not sure What that means.
I asked if it was possible if the Hodge had come back, she said that's virtually unheard of, especially as I had a clear pet three weeks ago. I'm still worried. Hate being in hospital!
How's everyone else doing??
Aw Cezza, hopefully you'll be home soon. Your neuts are low but try not to panic, I often had low neuts during chemo just take extra care with hand and food hygiene and you'll be fine. Make sure you avoid the forbidden foods! Take care lovely xxxxx
Hello :)
Aww Cezza I'm so sorry... I'm glad the lovelies Jakki and Moomy have posted their usual sage advice :)
V warm and sunny a londres. I had a lot of whiskey yesterday. But am surprisingly sprightly today haha.... Writing this on a bus home, went to see my fam in central.
As for poem... Here we go. It doesn't rhyme though:
Thomas is my NHS name
They'll all say it when they see me -
"Hi Thomas, I'm..."
"How are you today, Thomas?"
"We're going to put the needle in now,
Thomas
The canulla is going in now"
"I'm sorry for the pain, Thomas -"
She said, as I dry wretch
"Your veins are bent out of shape;
It's because the chemo drugs
Has clotted them all up so
They don't flow so well anymore"
"If you'll lay down on the slab, Thomas"
"Thomas, here's your chair for today"
We'll do what we can to keep you alive,
Thomas; my body was broken and
Couldn't fix itself -
It was eating itself
And replicating itself
And misreplicating itself
And duplicating itself
And misduplicating itself and
Killing me
"Thomas, you've done really well -
As far as I'm concerned,
You're in remission"
You've got no hair, you've got weird nails,
Your immune system is shot
And your muscle has wasted away
But he's alive, is Thomas -
I'm not sorry to say I hope
To never see you again
Thanks all.
Doc says I'm doing well. They injected me with GS something or other. My neuts are now 2.4 and my inflammation markers have gone down to 12. They think I had a virus. God, mixed with the chemo, it's been awful! Only 6 more to go..aaarrrggghhh.,
Love the poem Tom. Especially the bit at the end. Out of interest, How come you didn't have a line put it?
Jakki - Hope the celebrations went well...
Anyway - thanks again for the support. What would I do without you all...x x x
That's so great to hear Cezza! Well done you. You've battled this one too - and you've come out on top!
Cezza, if you get bone pain from the G-CSF, the American folk on one site I use, suggest Carytin to help, it does a bit and if you take it with paracetamol you might find the worst is eased. The generic name for Clarytin is Loratadine.
its often used to boost low neuts and you might find you need it again during the course of chemo. Really hope you are home soon, as I know it isn't much fun in hospital, hope they have you isolated and at the very least, in a side room?
Sorry I wasn't about at all yesterday, was at Bletchley Park and then off to a stunning concert to celebrate American Independence Day last night, first half all American composers, including the Peaslee Trombone Concerto beautifully played by daughter, in which son had a short beautifully played cello solo too. Then the second half had Dvorak's Symphony 'To the New Workd' which they played well, too. Then as an end of year function, the orchestra had a get-together which meant hubs and I didn't get home till pretty late, sat discussing the evening till daughter and her pal got in from a further drink!
Hugs to you all xxx
Moomy
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