Recently diagnosed

Good luck for today Tom.....hoping all goes well and veins behave....

Dxx

Hey all

Aww thank you! It went fine, my vein my hand is all bruised but feeling ok. Only problem now is that I'm feeling a mite exhausted (sleep last night came there none) BUT I'm going to a gig very shortly! AHHH.

Oh well! At least scan is over :)

Hope all are well. I find results on 16 sep as I said.

T

Aw Phil, just read back about your charity match, that's awful! Hope you manage to sort something with the burgers and sausage. Sounds like a change of club is definitely due- what a shame! 

Krazy, rubbish that chemo has been postponed, will you get GCSFs? My neuts were often low but went up with the injections, I needed them for every other chemo but never had to postpone. I did the injections myself, they were different to Phil's, mine were pre-filled syringes which had to be stored in the fridge, top tip take them out an hour before you inject if you get those! Hope you are feeling ok.

Cezza, don't panic too much about those neuts, I was below 0.5 lots and never got an infection (turned out what they thought was a chest infection just after 6b was the Bleo-damage), keep taking care with hand washing, not long now!!

I missed 3,000 who got it??

Mark, Tom, Moomy, John, Cee, Daisy, Claire and everyone hope you are well this morning.

Steroids still keeping cough and wheeze at bay; did a run and a river swim yesterday and felt good. Hoping consultant will taper them when I go in three weeks, I am still not sleeping well and do resemble a pouchy hamster.

love Jakki xx

Hi everyone, 

Phil, what a pain about all that food! Glad you had space free in your freezer though. I bet it will eventually get used.hope blood tests settle ok

G-CSF jabs are good, there is another type which is a one off, but the G-CSF, as Jakki says, are ready prepared, you get one out of the fridge and after it has warmed a bit you just pinch a bit of flesh and give it. So hope they decide to use that, Krazy. 

Jakki, oh my, missing the magic 3000! Oh heck! I hope too, they can reduce your steroids, glad your fitness is improving. 

Tom, they found a vein, hooray! Now hope for great things from that scan. 

Everyone else, hope things are going on ok

we have had a session of retail therspy! Yay! Daughter is feeling better and has begun sleeping a bit better too, phew! We've also had deep chats. She has a counselling appointment today, we will both drive in, so I can drive her home if need be, then if all is well I will get on the train home again.

hugs to you all xxx

Hi guys, been for pre chemo bloods today so keeping my fingers crossed for tomorrow really don't like it being delayed. Will mention those injections to them if they delay it again would prefer to have the injections rather than a delay. Thanks for the tips guys on the injections. 

Also got my appt regarding what they can offer with regards to complimentary therapies today. I have also been referred to a counsellor moomy as find it hard sometimes, does your daughter find this helpful? I am normally very level headed but this has been something else and counselling will be a first for me. 

Tom I'm glad they managed to find a vein. Fingers crossed for a clear scan.

jakki hope they reduce your steroids soon and you can get some sleep! I'm am worried about the bleo as have mild asthama. Consultant said he may drop this depending on scan after the second cycle.

Phil hope your bloods will be okay and then you can return to your fitness course 

Hope everyone else is feeling well today xx

Hi guys, been for pre chemo bloods today so keeping my fingers crossed for tomorrow really don't like it being delayed. Will mention those injections to them if they delay it again would prefer to have the injections rather than a delay. Thanks for the tips guys on the injections. 

Also got my appt regarding what they can offer with regards to complimentary therapies today. I have also been referred to a counsellor moomy as find it hard sometimes, does your daughter find this helpful? I am normally very level headed but this has been something else and counselling will be a first for me. 

Tom I'm glad they managed to find a vein. Fingers crossed for a clear scan.

jakki hope they reduce your steroids soon and you can get some sleep! I'm am worried about the bleo as have mild asthama. Consultant said he may drop this depending on scan after the second cycle.

Phil hope your bloods will be okay and then you can return to your fitness course 

Hope everyone else is feeling well today xx

Not sure why it has posted my post twice. Tried to delete one but it will not let me. 

afternoon all.... Off to hospital in a few hours for bloods and clinic (follow up to the chemo, at last, I think, though I'm not sure, as the letters are so vague it could be anything; only found out I need the bloods beforehand as they phoned me, after I had a hissy fit at them last week, when I was in with the infection/boil/lump/scan) Hoping can get somewehre with them today; wonder if counselling might be helpful for me, perhaps that would help my sleeping; slept very well last night... but that was after a couple hours bowling, and the obligitory 5 pints of Guinness, plus my melatonin and the final sleeping tablet I had left (hope they might dish me out some more of the temazepam.... - yeh I can see why that stuff might be addictive; so nice and chilled today, post taking it last night, though how much of that is still the drug, itself, and how much is just that I actually got over 5 hours sleep, I'm not sure). Feeling my energy is rising again; guess that infection must have knocked me more than normally such would have done, in my pre-cancer days, well, that, and the possibility I was getting delayed radition induced fatigue too... - still not convinced the chemo fatigue has entirely left me...  Hoping I can quizz the doctors today on a few thigns, see if I get their approval to leave the ocuntry December (well though if they don't tough luck as I'm flying off for Christmas whatever)... - also would love to try get myself to a spa, and get some massage, etc, there's an ezpensive one not far from here, I've earmarked; been a bit concerned, though, that anything decent involving lymphatic drainage, E.G., hot stone, might not have been too hot an idea, during chemo/active treatment, so can ask them about that I hope (my back is so* painful!)...   hope everyone gets on OK with their neuts, and chemo going ahead; Oh, and re the bleo; I figured I'd suffer badly from that, as a smoker of twenty years, but seemed I took it fine, only the vinblastin that messed me up, and had to be dropped from my chemo infusions, err, about half way through my cycles...  Good luck anyone else having anything done today/tomorrow. Must go get more tea, and try rehydrate before I have to go get my bloods done!- I'm sure my Guinness readings are a bit high in my blood still... and perhaps the absynth I had when I got home was't too smart an idea last night/this rmoning...