My daughters lymphoma

FormerMember
FormerMember
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Hi  I am new to the site, and can’t believe I am actually on a here to discuss cancer! 
my daughter is 22 and has just been diagnosed with Hodgkin lymphoma. She began to feel unwell approximately at the start of March this year. She had a bad cold in February which left her feeling totally wiped out and thought her body was just getting over that. It started with bad night sweats, and extreme tiredness and hives.She then had a pain on her right lower side of pelvic area, which became worse when she moved about or done any physical movement. So at this point she thought her duvet was making her too hot and perhaps may be a cyst on her are you Ovary. She plodded on like you do, then the lockdown came!! So getting a doctors appointment was so so difficult. She was given a phone appointment and after her consultation she was sent for blood tests. Her bloods came back with high white cells( inflammation) and a few other white cells abnormal  And low on iron. She was told by her doctor that she has an infection somewhere in her body, and at this stage without an examination was hard to diagnose anything. She was given a general antibiotic for maybe an infection in her Pelvis or womb area. Obviously that didn’t work or help anything. Her symptoms became worse, she started getting cold chills, and pain throughout her arms and legs with an odd sensation feeling. Her appetite went  too . Then in April she had a lump come up on right hand side of neck with swelling  in the area too. It was long and didn’t hurt and was probably the size of my baby finger! So she was given more antibiotics!  She has now had 5 blood tests, 3 lots of antibiotics and about 10 phone calls. Because of this lump it’s only now the doctor sent her to the hospital for a biopsy. Her night sweats have stopped and her aching has improved and her lump has gone down slightly. She is now waking up about 5 in the morning with backache, so bad that only pain killers help it. She has a pet scan next Friday, which I don’t think they will give her the results of that day?? ( anyone know)? everything takes so long especially at the moment!!!   I am so worried that this has spread to her liver/ bowel  or somewhere in that area? Or did it start in that area? Or did it start in her neck?? She has slight tender area under arms and ground but nothing too bad, her spleen area is started to become slightly tender too. 

so sorry for this long story, I am rubbish at putting things down in writing.. ANY HELP  / comments would be much appreciated. I am so scared how far this may have spread..    thank you BeeTulip

  • FormerMember
    FormerMember in reply to moomy

    Hi moomy

    thank you! Heart Feeling emotionally done in today.. my poor girl , life is so cruel sometimes ....

  • FormerMember
    FormerMember in reply to FormerMember

    hi lily 

    thank you so much , your positivity really helps. 
    Good luck with all your treatments, and I hope you get your head around the fertility! It’s a lot to take in, but it’s ok! 


    Keep me posted lily With how your getting on.

    thank you once again 

    take care of yourself 

    HeartHeartHeart

  • Thinking of you, Lily, a change of treatment already sounds a hard thing to take in but your team are experienced and so you need to rely on them.
    Sending hugs xxx

    Moomy

  • Hi /Julie 

    its so hard watching your child going through this, please do find a place or a way for you, yourself to grieve, as you need to! You’ve brought a person into the world to love, nurture and protect and help grow to adulthood and they’ve gone and got cancer, it HURTS! I so understand your devastation, please do use this as a way of helping you vent your anguish.

    Big hugs xxx

    Moomy

  • FormerMember
    FormerMember in reply to moomy

    Thank you Moomy. Sent me for a bit of a spin but I trust my doctor. They're deciding what is best for me and I'm trying to stay as positive as I can!

  • FormerMember
    FormerMember in reply to moomy

    Hi moomy

    what can I say! You  always say the right things and have  the right answers!  It’s exactly how it is. It really is rotten.

    thank you moomy 

    bkess you xx

  • Justt remember Stage doesnt mean as much in blood disease, it is not the same thing as solid cancers. 

    They know what each Stage of the disease requires to treat it, to achieve similar outcomes for each Stage.

    Nick