Hi greeny123 and a warm welcome to this corner of the Community although I am sorry to see you joining us. I am Mike and I help out around our various Lymphoma groups.
I don’t have Hodgkin's Lymphoma but for some context I was diagnosed way back in 1999 at 43 with a rare (8 in a million) incurable but treatable type of Cutaneous T-Cell NHL (a type of slow growing Low-grade non-Hodgkin lymphoma) ……. eventually reaching Stage 4a in late 2013 when a second, also rare (4 in a million) type of aggressive Peripheral T-Cell - Not Otherwise Specified NHL (a type of fast growing High-grade non-Hodgkin lymphoma) was then presenting so although my Lymphoma ‘type’ is different I most definitely appreciate the challenges of this journey rather well.
When you say stomach ache….. is this due to where your HL is presenting?….. the effects of your treatment?……. or is it like bad Indigestion or a bad tummy bug?
It is actually very important to ensure that your clinical team know about your problems as they are best placed to help you out as they know you best and they would be able to check you over and if required prescribe something to help.
During my main chemo I developed very bad Helicobacter Pylori, a bacteria that developed ulcers and stomach inflammation the 3 pack antibiotics I was given for the HP were horrendous but it did fix the stomach pain.
thanks for replying to my question paul
The chemo used for HL is strong and can strip the stomach lining so you may need something to help this.
Cheers Mike still all new at the moment will get there
Good morning greeny123 …… yes you will get there.
You may want to also check out Lymphoma Action. Lymphoma Action is the main UK Lymphoma Specific Charity who have lots of good reliable information, videos..... basically all things Lymphoma....... pre, during and post treatment.
They run various Support Platforms… I highly recommend these groups as this will widen your support base and there is nothing better than ‘talking’ with others who have walked or are walking the same journey.
They also have a great Buddy Service where people can be linked up with someone who has walked the same treatment journey.
The LA helpline is open every week day from 10 till 3 on 0808 808 5555. This is a safe place to talk things through and get support.
