Results

Hi Mark well done in the 100% response to treatment. Might be your trusts routine of getting a baseline scan after treatment. Ring your cns in the morning if drop her an email. 
Hugs 

Hazel 

Spider3 said:

wants me to book a MRI with contrast for head and neck .not sure who's requested it or why .is this normal ? Not sure I should be still happy ! Anyone else had the same follow up ? 

I don’t understand why they would do that. Maybe it’s an admin cock up? I would ring your CNS tomorrow for an explanation 

Total response is the best you can get. Well done. 

That's great news Mark. Maybe the letter is an admin error.

Ray.

Amazing news for you! Congratulations  

This is amazing news Mark. Really happy for you 

That's the best news! 

What a shame they've confused it. Your CNS sounds lovely, I'm sure she'll be able to explain.

Hearing that treatment has been successful can feel weirdly like an anti-climax - it's hard to get our heads around after all we've been through. Do something nice to celebrate!

Excellent news.  I hope they clear up the MRI request and you can start to get on with you new life knowing it was so worth it. 

Good news CNS  said MRI is just for baseline after treatment, they do one before and one after ,thank goodness , head was everywhere!! 

Yes ,I don't know why I feel like I do at the moment ,I thought I'd be jumping about but it's still sinking in ,and I suppose I still feel weak etc 

Thank you 

It is very common not to be jumping with joy at the news.  Others wonder why you're not able can't understand that we are still traumatised by the experience.  In time you will celebrate, maybe not overtly, but for you it will mark an important stage of moving on.