Possible recurrence

  • 9 replies
  • 41 subscribers
  • 173 views

Probably my anxiety playing games with me, but for the last couple of mornings I have woken up to spitting blood. Usually just 3 or 4 "spits" and it clears up.

This is exactly the same as was happening when I was diagnosed last March. Of course Dr Google hasn't helped me this morning (should have asked here first !) by telling me the cancer can return within 6 months of treatment ending. My treatment ended in June last year so in that window.

No other symptoms or anything like that, if anything my mouth has felt like it's really been improving the last couple of weeks.

Got a GP's appointment for later this morning which was good, but just wondering if anybody has similar experience.

  • I finished CRT for tonsil cancer in June 2023 ...our mouths and throats took a lot of punishment....spitting blood was a common occurrence for many months afterwards....but you are doing the right thing seeking reassurance from your GP....

    Peter

  • I recently had a period when I would spit blood after cleaning my teeth.. I had a 'sore' on the roof of my mouth that I would catch with my toothbrush.. I eventually put it down to the SLS in my Duraphat.. it occasionally upsets my my mouth and makes my mouth sore... everything cleared up after a few days.. but yes, if you are concerned go see your GP or ring your CNS.

    Loz (61)

    Oropharyngeal right tongue base T2N2bM0 squamous cell carcinoma p16 positive.. 

  • Got a GP's appointment for later this morning which was good, but just wondering if anybody has similar experience.

    Forget your GP. This will be a waste of time. 
    Go straight to your hospital. Message your CNS to get you seen. It’s probably nothing but best seen by the experts asap

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    I BLOGGED MY TREATMENT 

    Macmillan Support Line -  0808 808 00 00 7 days a week between 8am-8pm

    Community Champion badge
  • GP appointment was OK today, I guess. Did some basic checks - feeling my neck and checking into the back of my mouth. Said no signs of anything, but similar to the replies on here that bleeding can be very common for some time after treatment.

    Got my first post-treatment follow up with Head & Neck on the 5th February so not too long to wait. However, taking the advice on board here I've left a message for my CNS to call me back to discuss.

    Probably nothing like has been said but just brought back a lot of bad memories this morning.

  • Hi Fife

    CNS will be well aware of every issue that crops up post treatment ...let us know how you get on

    Peter

  • In luck. ENT have had a cancellation so they've given me an appointment for Wednesday morning.

    More than happy with that.

  • I'm Ninewells in Dundee....they are usually pretty good with aftercare issues

  • In luck. ENT have had a cancellation so they've given me an appointment for Wednesday morning.

    Brilliant. Fingers crossed. 

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    I BLOGGED MY TREATMENT 

    Macmillan Support Line -  0808 808 00 00 7 days a week between 8am-8pm

    Community Champion badge
  • Hi good luck for Wednesday. Remember keep off Dr google it’s not our friend. Although I’m over 6.5 years my ent consultant said on my last appointment if I’m every worried about anything contact my cns or her medical secretary not the gp which is good to know. 

    Let us know fingers x it’s just affects if treatment. I’m still prone to ulcers when introducing some new foods. 

    Hazel c

    Hazel aka RadioactiveRaz 

    My blog is www.radioactiveraz.wordpress.com  HPV 16+ tonsil cancer Now  6 years  post treatment. 35 radiotherapy 2 chemo T2N2NM.Happily getting on with living always happy to help

    2 videos I’ve been involved with raising awareness of HNC and HPV cancers 

    https://www.instagram.com/merckhealthcare/reel/DBs8Y0niJ8N/