I was given some great news on Friday
My PET scan results came back clear of any cancer. I was ecstatic for a few hours then started to become tearful and emotional which is the state I am still in at present.
I am overjoyed to be clear after a few months of living and fighting this disease. Family tell me I should be bouncing off the wall with joy but I am flat as a pancake.
Had anyone felt this way?, Is it a normal response after living with high anxiety and stress for months ?
I would love to hear your experiences of getting your first PET scan results.
Many thanks
Hi,
I don't think we can predict our reactions. When I got the all clear it was after weeks of processing my oncologist's prediction that the chemoradiation was unlikely to work completely because of the cancer invading the bone of my eye socket. She had talked eye removal. My first reaction was 'but I thought...', 'well I did not expect that...' Different oncologist and about 4 nurses were all grinning at me because obviously it was good news, but I didn't feel anything, or know how to react. I wasn't elated at all.
But a few weeks on i find myself having moments of pure joy as I'm washing up or cooking and I think 'wow, my life is back to how it was!' It's finally sinking in that the future and the eye I had taken away in my mind are back again. So I think it's a gradual process after all the trauma and uncertainty. Don't force it, it'll happen. Have a great life xx
Many thanks lovely I will trust the process .
Have a great life too xx
Hi yes it’s not an uncommon reaction. Even me little miss positive was deflated when the news no evidence of disease was given to me. I was static in oncologist s office. But then when we walked down the stairs I looked at my husband and said well what now. We drove home in silence which is unusual for me. I soon came round but I think it was the fact from may 2018 to January 2019 our lives revolved around cancer. It was ok now what.
you’ll get there we all do.
I’ve stuck around on here to help others and in a way that helps me also.
hugs Hazel
Hazel aka RadioactiveRaz
My blog is www.radioactiveraz.wordpress.com HPV 16+ tonsil cancer Now 6 years post treatment. 35 radiotherapy 2 chemo T2N2NM.Happily getting on with living always happy to help
2 videos I’ve been involved with raising awareness of HNC and HPV cancers
You are definitely not alone. During my treatment I did the Macmillian buddy counselling. The lovely lady who called me weekly warned me that I may not feel excited when I get my first all clear! To be honest I couldn’t understand what she meant as I thought couldn’t wait for that day but yes the day came and yes for a few mins over the moon but then felt extremely sad and empty. I think everyone has covered it on previous posts and all so true. I now know to prepare myself more for the check ups and know it’s going to be a bit of a crappy week but then it’s over and move on again. It’s hard when everyone is so excited for you but I think we’ve been through so much our poor brains are still processing the trauma and shock! This forum is so good as it’s good to hear all our feelings are normal xx
Yes. For all the time you're ill your life revolves around cancer. Then that focus us gone. It's great but takes some adjustments!
my PET scan lit ups few places, so I'm waiting for my next plan!
I sympathise. I was crushed, I must admit. I had a biopsy rather than rescan which was thankfully OK. Fingers crossed for you
Dani
Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019
Thanks for your reply
I am so glad I'm not alone in this I wish they told me you may feel a bit flat after the news I could have prepared myself
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