Not sure what it all means

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Oral cancer right cheek. Stage 2. Had option of RT or surgery and chose RT. Finished at end of Feb.

Had PET 2 weeks ago, today was Results Day. Except it wasn't. Registrar (never seen before) said there was "some uncertainty" about one area of cheek, not completely clear. I am referred back to the Top Dog for a further biopsy and MRI. Registrar would not commit to what was meant by "not completely clear" or what Top Dog might suggest, but she did not rule out surgery. She told me not to think ahead but wait and see. I didn't find that at all reassuring.

My brain is whirring like crazy. Got home 3 hours ago and still shaking with fear.

I don't expect any of you to tell me it will all be okay cos you don't know, but I am now petrified.

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  • Hi Meg

    It is only 4 months since you finished your radiotherapy so the fatigue is still a big factor. Don't push yourself so hard, just do what you have to in very short bursts. We underestimate the time that the radiation fatigue lasts. I used to do a few really small jobs first thing in the morning e.g hang the washing out and then get my husband to bring it in later, and then would rest up for a good while before attempting anything else. My husband is no domestic goddess either bless him and so I would ask him to do very small tasks only. In relation to the food he had to go and buy ready made frozen meals and fend for himself while I made what I could manage for myself. You can try to do too much too early and then disappoint yourself. It takes time and then suddenly things start to improve in the fatigue department.

    Explain to your family how things are and I'm sure they will understand that at the moment you can't do things like you used to. Ask them to bring food with them and explain that you might have to go for a short rest while they are there. Be honest with them as they do not understand the challenges of radiation fatigue.

    It is hard when you are used to being an active on the go person but you have to go with the flow at the moment and not beat yourself up.

    Lyn

    Sophie66

  • I am normally a very positive person but suddenly that trait has failed me completely

    Meg. Have a read of this article by Psychologist Dr Peter Harvey. It's one I quote often....It's about recovery from cancer. To quote the Dr... "Imagine a roller-coaster...........The end of the ride is equivalent to the end of treatment. And this is where I want to start"

    After Treatment

    Read it and pass it on to your family

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    I BLOGGED MY TREATMENT 

    Macmillan Support Line -  0808 808 00 00 7 days a week between 8am-8pm

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