Post 18 months treatment chemoradiotherapy

Hi Shaun sorry to hear your news bugger ! Not sure about Leeds not offering pentco have you asked at Leeds dental ? Or at bexley ? I kniw this trial was recruiting patients 

 https://raptorstudy.org.uk

maybe worth contacting them. 
hugs Hazel xx

I know it's a bugger. New challenges ahead. If it's a no no from Leeds I will enquire about the trial. Thought I had got away with osteoradionecrosis due to having proton therapy but hey ho I will have to get on with things. Surgeon said avoid any risky sports that could cause damage to the jaw. Told him I was a cyclist and no way I would give this up , it's in my blood. Peurto polencia in June 5 days hope your still spinning the pedals.

Hi Shaun Yes we’re over in Murcia as I type. The suns shining did 60 km yesterday Easter was a bit too windy ti geg out. You take care we don’t want any Geraint Thomas moments coming over handle bars  inti trees !!!! Everything x for you am disbelieving that Leeds aren’t offering pentco did you see Jaymit Patel ?
A sunny photo from yesterday biking along canal  

hugs h

That's fabulous and well done 60km . Yes I had previously mentioned it to him and he said it's not routinely prescribed but he could ask. I will be seeing him in 4 weeks time and will require. More miles equals more smiles. Thanks Hazel.

Shaun22 said:

My question is should I be pushing for pento treatment

Yes. You don’t have to enter a trial. It’s a proven treatment. Give Guys a ring and get a referral. They might not even need to see you. It’s a long treatment. Two years but worth it 

www.guysandstthomas.nhs.uk/.../vinod-patel

Hi Shaun defo smiles. Do has Dani says get jn touch via the link.

hugs H xx 

Hi Dani thanks for this. I will see what leeds say and persistently ask about pento treatment and will look at guys if no luck with leeds. Seems daft if pento treatment has a robust evidence base it should be a viable option everywhere.

Thanks Hazel I will get in touch with guys after I know what stage the osteoradionecrosis is in 4 weeks and if leeds don't offer pento.  Cheers.

Hi Shaun, sorry to hear you are having all this trouble. Did the tooth extraction cause the osteoradionecrosis, or was it going to happen anyway?

Regards Ray

Hi Ray. I had a really bad infected tooth and it was causing lots of issues so after a joint meeting with leeds dental hospital and oncology they decided an extraction was required. This was done in January and I  think this possibly progressed from then. Unless it was doing its work before as I always had issues pain and numbness with that particular tooth after treatment.