Hello all, I hope springs arrival has lifted folk.
I finished treatment on 11th August 2023. I’ve had 2 PET scans and neither have been conclusive so I’m now having ultrasound scans every 6 weeks to monitor my lymph gland particularly. This in itself is troubling as I was fully expecting an all clear by now.
Since February seemed to have turned a corner with my ability to eat and actually stomach food. There are still a few issues but they’re manageable and to be expected.
however during the past 2-3 weeks I am experiencing increased pain in my tongue, that feeling of inflammation where my tonsils were, coughing a lot more again and an overwhelming tiredness.
im due for my 2nd ultrasound this coming Wednesday so will discuss all of this with my oncologist. In the meantime have any of you felt this wave of discomfort so long after what seemed to have been a good recovery?
Every little discrepancy throws me into a state of panic particularly as I don’t have the all clear yet. I’m experiencing pain in my leg, my arms and shoulders what feels deep in my bones.
I believe few HNCs mastise if derived from squamous cell carcinoma but some do and present in your bones and lungs. Of course, that’s a worry if that’s correct.
any one else felt this way or experienced secondary cancer from this?
thanks so much, and keep well.
Nicky, Lossiemouth Scotland
