Great news...

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Well, my husband got his treatment response Pet scan result...no cancer activity found!!.... we were so shocked none of us ( me, hubby and son) expected that, we were hopeful, but, because of the stage and grade, we were worried ( stage 3 T4 N2..... after a minute or two, I just said " so, can we use the word " cured"?.. doctors response was " cured, well yes, for now... Later after we had got home, I was sat thinking, is he cured or is it remission?.... thing is unfortunately, we didn't see the usual consultant or Professor, we saw a registrar...so, didn't asked anything else, didn't feel as comfortable with him...anyway, can anyone shed any light?

Thank you

Xx

  • Oh well done. So happy for you. 
    The scan results show complete metabolic response or no evidence of disease. He is in remission. We are never cured but the longer we stay in remission the better the chances of remaining so
    We appear in NHS stats as five year survivors if all goes well, which is as good as cured as we will ever be. 

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    Macmillan Support Line -  0808 808 00 00 7 days a week between 8am-8pm

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    • Thank you Danni, I was just confused...and shocked....still can hardly believe it!

    Thank you again

    Cxxxx

  • Hi We’re in remission like Dani says. I got my 5 years last August for me. . Yes we were in shock when I got my pet scan results think most of us are. Just remember to keep up  with follow up appointments, sometimes we slip through the system so be pro active. Best advise one day at a time and enjoy living   Hugs Hazel 

    Hazel aka RadioactiveRaz 35 radiotherapy and 2 chemo  3 rd cancelled. HPV tonsil cancer 7 lymph nodes. 8 years post treatment living a great life. 
    No questions too daft to ask. 

    I’m also an ambassador for https://oraclehnc.org.uk/
    A leading head and neck cancer charity. 

    This is a link to a webinar i did with Oracle explaining the process of diagnosis. 

  • Thank you Hazel, appreciated...:-)))... there will be lots of appointments ahead, but, small price to pay..one question: what's the usual time to get the first  follow up app with the original referring Consultant?...Christie said you will need monitoring  every 3 months for a while, and have to scans...again, small price to pay

    Thank you again

    Cxxx

  • Hi the first year I was seen every 6 weeks although there was some leeway as I go away and as my oncologist said life’s for living so we tended to work round me. I have never had a scan but kniw Christies  do scan yearly from what a friend I know whim was treated there. After 2  years it’s usuallly every 3 months then the last 2 years every 6  month's. Again trusts do vary but I was told we would know before the scope if something was amiss and not to hesitate in contacting them if in between appointments. 
    Just enjoy living and as time passes the appointment s will become routine, I was lucky I never stressed about them.

    Hazel x

    Hazel aka RadioactiveRaz 35 radiotherapy and 2 chemo  3 rd cancelled. HPV tonsil cancer 7 lymph nodes. 8 years post treatment living a great life. 
    No questions too daft to ask. 

    I’m also an ambassador for https://oraclehnc.org.uk/
    A leading head and neck cancer charity. 

    This is a link to a webinar i did with Oracle explaining the process of diagnosis. 

  • Worrypants , I’m about a year ahead in terms of treatment. I get check ups every 12 weeks. My first two check ups were 6 weeks but the Pet scan was similar to your hubbies and consultant put me into the 12 week cycle if that makes sense?

  • That's really good news. Posts like this shows others that the treatment, gives good results, and they can come through it, with a good outcome.

  • Hi Worrypants,

    So pleased to hear the good news,

    Turi

  • Absolutely fantastic, wonderful news! x

  • Thank you BrianGrin... Did you have the same stage and grade as my hubby?

    It's still seems unreal, after the nightmare of the past 6 months.

    Wishing you continued good health Brian

    Xxx