Raynaud's Syndrome and cisplatin

Former Member
Former Member
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T2N1M0 tonsil cancer...Finished CRT June 2023

Suffered slightly with white finger syndrome in the past.....this winter white finger syndrome has escalated to the point where I sometimes have difficulty fastening buttons...have resorted to buying hand warmers....Anyone else have this issue after chemo?

Peter

  • Yes I did for the first winter , now it’s just slightly annoying when it’s cold I wore gloves most of yesterday as we had seriously low temperatures. I too had cisplatin  but in normal winters days I’m ok. Toes were very cold yesterday as well normally they are not too bad.

    Hazel 

    Hazel aka RadioactiveRaz 35 radiotherapy and 2 chemo  3 rd cancelled. HPV tonsil cancer 7 lymph nodes. 8 years post treatment living a great life. 
    No questions too daft to ask. 

    I’m also an ambassador for https://oraclehnc.org.uk/
    A leading head and neck cancer charity. 

    This is a link to a series of webinars on head and neck cancers. There will be updates as more are added.
  • Hazel, can I ask what is white finger syndrome ? This is strange timing to say the least , last few days the tips of my fingers been tingling like I had just scraped snow away ? I too had cisplaten chemo , 

  • There’s something  called raynauds I don’t have tgst my fingers don't go white they are just very cold  especially ehrn weathers as cold as it has been. Is it cisplatin or just age  who  knows    My first winter after treatment I was very cold fingers snd toes . The joys   Msybe moving snow it would have happened anyway   Yoh can ask your gp if you’ve raynauds like I said I don’t get white fingers. 
    Hazel 

    Hazel aka RadioactiveRaz 35 radiotherapy and 2 chemo  3 rd cancelled. HPV tonsil cancer 7 lymph nodes. 8 years post treatment living a great life. 
    No questions too daft to ask. 

    I’m also an ambassador for https://oraclehnc.org.uk/
    A leading head and neck cancer charity. 

    This is a link to a series of webinars on head and neck cancers. There will be updates as more are added.
  • Just googled it , I defo don’t have it. Thanks for you answer, as you say old age rather than treatment is the cause of many life problems Grin

  • Bless you Brian. I’m 67 next.  We do forget we are getting older so will still get other things. Not everythjng is cancer related. Our nephews 41 he wears gloves in summer he’s certainly got white finger. hugs Hazel 

    Hazel aka RadioactiveRaz 35 radiotherapy and 2 chemo  3 rd cancelled. HPV tonsil cancer 7 lymph nodes. 8 years post treatment living a great life. 
    No questions too daft to ask. 

    I’m also an ambassador for https://oraclehnc.org.uk/
    A leading head and neck cancer charity. 

    This is a link to a series of webinars on head and neck cancers. There will be updates as more are added.
  • Do your fingers tingle at any other time? 

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    Macmillan Support Line -  0808 808 00 00 7 days a week between 8am-8pm

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  • Just recently in the cold weather, just the tips , only a couple fingers on one hand 

  • Just one of those things I guess

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    Macmillan Support Line -  0808 808 00 00 7 days a week between 8am-8pm

    Community Champion badge

  • Hi Hazel

    I would be one of those wearing gloves too although I don't have white finger. I'm not surprised that you and others have cold hands and feet with the temps you have been having. I am one of those that feels the cold dreadfully and it has definitely got worse as I get older. I was recently in Tasmania for a holiday and I put my thermals on when it was 19 degrees. I know I would not survive in England I'm too soft.

    Lyn

    Sophie66

  • I was recently in Tasmania for a holiday and I put my thermals on when it was 19 degrees.

    You softee, Lyn. 
    Stan and I were out for a bracing walk at sunrise in minus 6. Lovely 

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    Macmillan Support Line -  0808 808 00 00 7 days a week between 8am-8pm

    Community Champion badge