It has been suggested to me that the only way I may be able to eat again is by having the above procedure.. There are no guarantees and, until the surgeon has a look he cannot say for certain. Following a video fluroscopy it looks like a muscle spasm. People are very split on whether I should go ahead with it. I think after this barbaric, lengthy treatment what have I got to lose??? Has anybody got any experience or know how about this??????
Hi
it’s Cricopharyngeal myotomy
Sorry I can’t help with any experience but I know what it is anatomically ( being a vet)
A quick search of some scientific papers seem to suggest it has success
You say people are split over whether you should go ahead who? Your clinical team or friends?
I would really go with what your team suggests but ask them if there is anybody who has had the same procedure, after radiotherapy, who you can talk to. Have you got time to decide?
Dani
Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019
I wrote a blog about my cancer. just click on the link below
My team say go for it, some of my family don't agree. I'm not sure hownlong, I was put on a 12 week,list 5 weeks ago so who knows! I can't find anybody who has had the procedurecfollowingbRT. I was hopingbthere mightbbecsomebodybonnthe website. Thank you for responding to me.
I can't find anybody who has had the procedurecfollowingbRT.
It would help to talk to somebody. If your team can’t help maybe send The Swallows a message. Maybe they can find someone
Dani
Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019
I wrote a blog about my cancer. just click on the link below
Whatever cancer throws your way, we’re right there with you.
We’re here to provide physical, financial and emotional support.
© Macmillan Cancer Support 2024 © Macmillan Cancer Support, registered charity in England and Wales (261017), Scotland (SC039907) and the Isle of Man (604). Also operating in Northern Ireland. A company limited by guarantee, registered in England and Wales company number 2400969. Isle of Man company number 4694F. Registered office: 3rd Floor, Bronze Building, The Forge, 105 Sumner Street, London, SE1 9HZ. VAT no: 668265007