Neck results are in....

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So met with the consultant today and whilst happy that the surgical aspects have dealt with the original tumour, he confirmed both sides of neck have cancer present. back same time next week for oncologist ahead of RT and Chemo. I think I had let myself believe that the surgery would be enough but was always only 50/50 so will be searching for all the RT tips and tricks. Still very swollen around neck so not sure how that will impact mask production either. Interesting times! 

  • Sorry to hear that GeneS I am due to have a pre op assessment this week for a lump on neck . I have had 30 RT  and 4 chemo. This was for base of tongue cancer and it had spread to lymph nodes on  both sides. This was in january last year when I finished treatment , all was fine until a few weeks ago. Just take it one day at a time is my advice and you will be fine. Did you have a skin graph ?

  • I too am sorry to hear that, but hold onto the fact that this cancer is very responsive to RT and/or chemo to give a very high chance of a cure.  It may be a rough ride, but we all have your back on this one.

    Peter
    See my profile for more details of my convoluted journey
  • Yes, the flap constructed from left arm and graft from groin to cover over the hole :-)

  • Hi Gene . Take it one day at a time I was  61 when I had 35 radiotherapy sessions and 2 of a planned 3 chemo. Keep busy as there’s a process to go through that can’t be rushed the planning wizards will do their magic we all react differently. My blog below tells my story. Stick with us in here we will all help. 
    Looks at it like a belts and braces job head and neck cancers do respond well to treatment, it’s it easy but it’s doable. 
    As for the mask there time for your neck ti go down they will moukd the mask to your face and neck them when fastening you  to the table  they can adjust as necessary.i coukd t have surgery as one if my ky oh nides was too close to spine ,here I am 4 years later. 

    Hazel x

    Hazel aka RadioactiveRaz 

    My blog is www.radioactiveraz.wordpress.com  HPV 16+ tonsil cancer Now  6 years  post treatment. 35 radiotherapy 2 chemo T2N2NM.Happily getting on with living always happy to help

    2 videos I’ve been involved with raising awareness of HNC and HPV cancers 

    https://www.instagram.com/merckhealthcare/reel/DBs8Y0niJ8N/

  • Not the best news Gene. So sorry

    i never had a chance at surgery. RT was all I had and it fixed me. Fingers crossed for you. 
    We can all pitch in with help and tips when it’s time. 

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    I wrote a blog about my cancer. just click on the link below 

    https://todaymycoffeetasteslikechristmasincostarica.com 

    Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm

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  • Thanks GeneS its like we are in opposite stages with getting fixed. Can you tell me a bit more  information please or anything that might help. Is there anything I can do ?. Regarding RT and Chemo depending on where but get eating if you are underweight as I have lost probably 3 stone and everyone comments on how well I look which is funny as been diagnosed with heart failure also after a year or more of chest pains and being told there is nothing wrong with me. Talk to your nurse and read the books they give you and get top advice here from people who have been there and done it . You will get through this and come out the other side better