Bit worried!

Hi Rich.

I remember you said you were having tests which I presume must have been for the fatigue and loss of balance etc. I remember talking with my oncologist about losing words and being forgetful after RT. I had quite a chunk of hair loss at the back of my head so I guess the base of my brain got hit hence the symptoms. It must be worse for you getting your RT higher up. Did you get anywhere with those investigations?

The loss of taste sounds horrendous. I know there are exercises to try to regain some smell and taste. Can your SLT help? Rather than your GP can you contact your CNS to have your next review brought forward

Rich123 said:

I apologise for sounding like a silly old sod!

You are not and please don't apologise. You are obviously living with the consequences of your treatment and you need professional help, either to fix this or to give you the tools to do so. Hugs

Hi ricy  contact  your cns to arrange a chat with your s l team late onset side effects  are real and need addressing. We’re grateful to be cured but quality of life is just as important as quantity of life. 
I’ve a friend whose brain fog meant he started to re tell a tale then often lost  the thread. He’s much better now at 5 years but it’s frightening. Try a few memory things crosswords, jigsaws sudoku learn a new language. I find Duolingo good. It s free and takes around15 mins  of your day but helps retrain the brain. 
as We say the cancer  that keeps on giving 

hugs 

Hazel 

Hi Rich

Have you had your thyroid levels tested?  The RT can damage the thyroid and many of the symptoms you have could point to that - along with many other things.  See the Gp and get a simple blood test.  Since they have corrected my levels I have felt much better.

I agree with this. I have started doing number puzzles and actively working on my memory and it really helps. Also keeping busy stops you dwelling on the issue instead of thinking you’ve lost the plot. I also find a regular exercise routine helps a lot.