Hello from Australia

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I was diagnosed with throat cancer (hypopharynx squamous cell carcinoma HSCC) in Nov 2024 and started combined chemo and radiation therapies at the end of Dec 2024.  The treatment was very, very challenging for me an my family and the side effects became progressively worse as time went on persisting and peaking well after actual treatment ended.  The primary cancer was resolved but has metastasized into my lung and lymph nodes so I am now on immunotherapy (Keytruda (pembrolizumab)) and travelling relatively well.  Quality of life is good, still a lot of coughing, mucositis etc. but overall doing pretty well.

  • Hi again

    thanks for letting us know how you are after treatment. So sorry you have mets. Immunotherapy is producing some great results. We have a few members here on Pembro

    One of our members is well over a year NED after two years on IT

    Have a look at his profile by clicking on his name. There is a link to his blog there.

    He will probably pick up the tag here too

     

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    I BLOGGED MY TREATMENT 

    Macmillan Support Line -  0808 808 00 00 7 days a week between 8am-8pm

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  • Hi STE. Congratulations on getting through your treatment it is definitely a hard time.  I do hope that the immunotherapy works well for you.Glad to hear that your quality of life is still good that makes such a difference. I too live in Australia and have found I have had so much support from this forum. My cancer was jaw cancer and over time I have had 3 occurrences and 2 lots of radiotherapy. Definitely challenging times but like you now my quality of life is good and I am enjoying every day for what it brings. I am coping O.K. with the side effects of my treatment although the challenges are still there every day. 

    Sending you my very best wishes

    Lyn

    Sophie66

  • Hi  , as   said, I was in a similar position to you, with mets in my lungs. Keytruda started to have an impact maybe after 6 months when my tumours started to shrink. There was then quite a long period when there was no size change, and they finally 'disappeared' after almost two years. I think your mucositis is still a function of the radiotherapy as Keytruda has a different set of side effects. The mucositis will gradually go away, but beware of dry mouth etc in the near future! For Keytruda, I tried to keep my immune system as healthy as possible through daily exercise, although I know that is not an option for many people. Good luck, and I'm more than happy to answer any  questions. Ans  https://ansmackay.wixsite.com/uclgeography/blog