Ongoing journey- struggling

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Hi folks - not been on a little while - went for results of my petct scan and feels like starting again.

I’ve been through chemo and  radiotherapy but looks like cannier cells are still present. Next is biopsy’s under general anaesthetic- throat and lymph nodes. Prospect of surgery looms - has any fpeople had this sort of experience who can help - finding this difficult to get my head around and come to grips with.

Nige

  • I’ll tag  

    He can probably help. 
    Meanwhile have a look at his profile. He is doing well and us one of our Community Champs. 

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    I BLOGGED MY TREATMENT 

    Macmillan Support Line -  0808 808 00 00 7 days a week between 8am-8pm

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  • Good evening Nige, i know the feeling as i had my first operation (2008)followed up with radio and chemo; however, a year later it returned, so i had another operation, which again was not as it returned for the third time in 2010 thankfully, it was third time lucky. Let's hope you don't need further treatment/surgery. I cannot fault my consultant, as he and his team were with me throughout and never gave so, which gave me confidence and trust. I never gave up hope, and I hope you can get through this difficult stage. Good luck with your biopsy, fingers crossed for you,take care.

                                                                                             Chris 

    Its sometimes not easy but its worth it ! 

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  • Hi Nige. Hold in there and never give up hope. Like Chris I have had 3 occurrences of cancer although mine was jaw cancer. First started in 2013 when I was 59 when I had a mandibulectomy and radiotherapy. It then raised it's head again in 2019 when I had a maxillectomy and more radiotherapy. It had another go in 2022 when I had another maxillectomy. I am feeling quietly optimistic that it has had enough of me now. Early detection is the key and having those regular 3 monthly checkups is what caught mine before it got a hold. I definitely felt de-moralised when the cancer returned and had a bit of a 'down' time for a while but the only way forward was to grit my teeth and have those ops. and move forward.  I am now living a very happy life and enjoying every day for what it brings me and I rarely think about  more occurrences now. You will get through this. I found the support of this forum has been invaluable.

    It is amazing what inner strength you find when you need to.

    Sending you positive thoughts.

    Lyn

    Sophie66

  • Hi Lyn - thanks so much for getting touch, your story/journey is inspiring - I read back over the stories and take the positive from everyone.

    I’ve found it helps me share my journey and struggles as so many of us have the same huddles and brick walls that we one way or another , surmount.

    My latest huddle is the naivety I had that once I’d had treatment - chemo & Radiotherapy - I’d be clear, but not the case - a real slap in the face, really naive.

    the down days are out doing the good at present, trying to turn that round - the support on here helps, my god does it help.

    thank you, Nige

  • Hi Chris, thanks for reaching out - so helps my resolve.

    Not only is the fear of cancer the one bridge to cross, before that, my greatest fear in life was being cut open, prior to my Radiotherapy I had operation to remove 19 teeth, the theatre team were incredible , especially the anaesthesiologist who just went that extra step to address my anxiety.

    it’ll be same again for general anaesthetic and biopsy - possibly followed by surgery.

    thanks for helping my journey.

    take care , Nige 

  • Love the photo, i also have a dog, although it's a lot smaller being a Dachshund

    Its sometimes not easy but its worth it ! 

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  • Hi Chris -your Dachshund looks like they are extremely snug on the bed.

    the one you see in the photo is Saffy - she isn’t mine , my wife and I look after dogs - Saffy is one of them and just like all of them that we look after  , we are very close to them. We’ve taken a few of them few illness’s and recuperation- since December I have only seen a few of the ones we look after, but my god, don’t they help !!!

    Saffy is just over 26 months, in the 15 months of her life, she had to spend 8 months in a cage due to leg hip operations - BUT if you saw her now, you’d never believe it - every minute spent with Saffy on her recovery has been amazing and now, Saffy is super quick and so affectionate.

    its wha

    The dogs and their owners keep me going - no doubt your chum is that for you too!

    Noge

  • Hi Nige. You are not naive. We all hope for the best after our treatment and that the cancer will not return. That is not being naive it is being optimistic. Unfortunately for some of us the cancer does return and we have to deal with it again. I am a glass half full sort of person so continue to be quietly optimistic as it has helped me move forward. I am also realistic and have looked into the facts and don't put my head in the sand but don't want this to stop me from living a happy life with my 'new normal'. It is a process. Once you have more info from your medical team and a plan forward things will fall into place.

    Best wishes

    Lyn

    Sophie66

  • Hi Lyn -  you sound very much like my wife, Ellise a the amazingly positive one, I’m not so. I do want to be more positive, but at this moment in time, difficult for me with yo-yoing  in how I’m feeling.

    I had my covid booster yesterday, knocked me for 6 and wiped me out. You are right, get this next biopsy done and know more and a way forward - the waiting game as it’s not till 10th June. But fingers crossed.

    Hope all’s good with you - thanks for the positive help. Blush
    Nige

  • Good evening, Nige. We got our first Dachshund when I had my last operation. It was mainly to keep me company after I was told I could not work anymore. We got a second and have never looked back. Keep up the good work Slight smile

                                               Chris 

    Its sometimes not easy but its worth it ! 

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