Base of tongue tumour

Druid said:

“I can’t do this any more”

MacMillan offer free counselling sessions and some people have really found them helpful 

https://www.macmillan.org.uk/cancer-information-and-support/get-help/emotional-help/bupa-counselling-and-emotional-well-being-support

Hi Druid

We are all unique in this experience from diagnosis treatment plan how  our body( and mind )will react  to it all and then how we heal and recoverr

I had a really tough time and luckily had my fabulous 75 year old Mum who drove me to nearly all of my appointments.Definitely sort out transport with your team (if you don't have anyone who could take you ).

I have to say the support  from the amazing people on this site got me through…( Dani and Hazel became inspirational voices in my head as well as ready their messages x)

I had 3 really bad days where I had to dig really deep to carry on but like Dani said theres a pretty dire alternative so after crying and feeling helpless I pulled some determination from somewhere to make it through .

You can do this ,I thought I wouldnt make it but I did and you will too x

Stay with us post whenever you need to 

Debbie

Sorry forgot to say I am dyslexic hope you can guess some words

Hi Druid

I've literally just left the hospital, 4 of  6 Chemos and 16 of 30 radiation…..I turned down the peg too!! Plan b Ng ie nose feed.

Over the weekend has been hell, today I have arranged to go ahead with this nose feed, hoping to meet with the dietician at tomorrows radiation appt.  Apparently once the decision is made, they don’t mess about.

i have been and am starving!!  It’s bad enough waking up in pain, but I’m walking with hunger pains too.  I don’t see the point in suffering and going downhill, for what!?  The ng tune was always inevitable…..primary is on my tonsil, secondary right side lymph.  However, they are treating ‘both’ sides, albeit one to a lesser degree, but boy oh boy!!  Swallowing even liquid is difficult.

I’m also experiencing the weirdest ‘salt’ taste issue!!! It’s horrendous, even a simple bottle of water, tastes like I’m drinking a bottle of ‘salt’, as do most other things!?!?  Perhaps someone can enlighten us both on this?  It’s making it impossible to get things down, I’m not hitting anywhere near enough calories, and as for those ‘Ensure’ drinks, jeeees they’re horrid!!  Or to me right now anyway.

Maybe you still have the peg option?…..I would!!

Take care

Deborah

Cake Lover said:

I’m also experiencing the weirdest ‘salt’ taste issue!!! It’s horrendous, even a simple bottle of water, tastes like I’m drinking a bottle of ‘salt’, as do most other things!?!?  Perhaps someone can enlighten us both on this?  It’s making it impossible to get things down, I’m not hitting anywhere near enough calories, and as for those ‘Ensure’ drinks, jeeees they’re horrid!!  Or to me right now anyway.

Do t worry too much about an NG. Okay, they are not the prettiest but they are easy to manage. I pump fed overnight with mine no bother. 
RT and chemo batter your taste buds and the platinum circulating in your blood makes everything taste bad. 
Use sparkling spring water rather than tap to moisten your mouth and put everything else down your nose. 
Even the smell of Fortisips made me heave but strangely after treatment finished and I was beginning to eat I quite enjoyed the mocha ones as a top up. 

Hello Druid, just popping up to say welcome and good luck. It's such a scary time and treatment is horrible but it's only for a few weeks. Try to take it one day at a time and you'll get through it. This forum was an invaluable support for me. I had an NG tube for a month or so after treatment, it was fine. Good luck again! 

Catriona