Hey all,
it’s been a slog, but finished my six weeks of chemo radiotherapy today!
I was diagnosed early Feb with cancer on lingual right tonsil (T2 N1 M0, hpv 16+)
I had two rounds of chemo (Cisplatin) on week 1 and week 3. The second dose really knocked me for six but thankfully side effect didn’t last too long (other than pretty bad tinnitus, which I still have)
other than that I seem to have avoided need for a feeding tube and and just about still able to eat and swallow with paracetamol and xantacaine (not sure of spelling but it’s like a liquid local anaesthetic you take 15 mins before eating). That plus 2-3 ensure drinks a day have helped keep calorie intake up.
Not expecting to immediately feel better, but looking forward to feeling better over the next few weeks and - eventually - enjoying food again
Thanks to all on the forum for the support, info and help when a joined
Hi Mistake Not
I was the same as you and did not feel confident to travel far from home for at least a year after my surgeries. Getting back to eating again albeit in a different form for me took a while and my energy levels were too low to take a challenging holiday. Instead I started small going away with my husband for a weekend fairly locally and then that built my confidence up. I learnt what I could manage and how to adapt things so that a holiday worked for me. Just took a 3 week holiday in Tasmania in Nov last year (I live in Australia) and was able to use all the experience I had gleaned from the smaller holidays so that the holiday was really successful.
You'll get back to the longer holidays you just can't rush it.
Lyn
P.S. Sadly my love for chocolate has gone too. I used to be a real chocoholic and now the grandkids polish off all my chocs when they are given to me as a gift.
Sophie66
I was the same, it gave my confidence one hell of a knock, I didn't want to go far from the house for a good while. We did go to Florida.to see our friends, about ten months after my treatment finished, that was fine. Although it was about four years before, I rode my motorcycle again, and I never did feel 100% happy on it again, so unfortunately, I sold it.
Ray.
I can so identify with this. I’m 5 months out and have zero appetite. Swallowing is problematic due to lack of saliva which makes eating a chore rather than a pleasure. I’m hoping that it’s early days and that things will get better. Can’t come soon enough.
Swallowing is problematic due to lack of saliva which makes eating a chore
Try taking a tiny sip of a warm drink to act as a proxy saliva while you chew.
Dani
Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019
I wrote a blog about my cancer. just click on the link below
Well done keep on doing what you’re doing
Hazel x
Hazel aka RadioactiveRaz
My blog is www.radioactiveraz.wordpress.com HPV 16+ tonsil cancer Now 5 years post treatment. 35 radiotherapy 2 chemo T2N2NM.Happily getting on with living always happy to help
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