Tonsil cancer first week of treatment.

Jaxo said:

I just don't want to be a pain to anyone. 

THAT was exactly my first thought. But you have to put that away. You won’t be a burden to your family so please get them galvanised now. By 4 weeks you won’t be able to drive and you will feel pretty rough. Also once you’re on morphine you can’t. 
At your next RT ask about patient transport again. You’re not asking for somebody to take you in for blood tests or a minor procedure. The radiographers know exactly what’s needed so get them to get things moving properly. The transport is your right. The hospital isn’t doing you a favour. 
Have you a Maggie’s near you?

www.maggies.org/.../

If you are in your own the support they offer is especially wonderful 

Hi Dani 

I wouldn't know about a Maggies?

My family literally is my son and sister so can't rely on them to even come to appointments.

My sister doesn't drive or she would take me.

How do I find out about Maggies? 

Thanks.

Jackie

Click on the link I made and see if there is one near you 

Hi, well done on getting through your first week - first box ticked! As others have said, the treatment can be quite a challenge as the weeks go on. Don't be worrying about asking questions or being a burden. I told my team about every tiny little symptom, issue and change. There are quite often fixes that I had no idea about so it's always worth mentioning. Same with transport. There were a few people who had transportation whilst I was on treatment. Your team will not be expecting you to have to get a bus so they'll help you sort. I was (and still am) in regular touch with my Macmillan Nurse who was / is an absolute star and got loads sorted. Keep ticking the boxes... 
Lx 

Thanks Dani, I'm in Essex, nearest one is Barts.

There must be something near me I just don't seem to be getting any support, more being made to feel guilty for asking. 

I'm just trying to plan ahead just incase.

Thank you.  

Thank you LX.

Just trying to look ahead incase I can't manage appointments.

I'm OK ATM.

Thank you.

Jaxo said:

There must be something near me I just don't seem to be getting any support, more being made to feel guilty for asking. 

Get your CNS on board. Mine was a godsend. 

Hi Jaxo

You have a life threatening/changing illness......you need to be offered all the support available......do not feel guilty.

If support isn't forthcoming ask for it.... politely.

Peter 

Hi o welcome from me you’re not being a pain treatments hard enough we’re all happy to help just ask any questions someone will always pop on. 
my cancer centre Leeds provided patients transport I was kick hubby drive me every day I couldn’t have driven and gone through treatment it was up to 90 mins some days due to traffic 

My MacMillan nurse was a godsend I still kept in touch with her she chance to my last ever appointment 5 years on to say goodbye. Find the name of yours either cns or Macmillian Cns is clinical specialist nurse yiu should have been assigned one 

Hazel x

Thank you Debbie.

I'm not very good at this chat thing, and have just seen this.

I appreciate all everyone's information and support.

Thank you  

Jackie