Hi,
First time posting and recently diagnosed with suspected head and neck cancer. I'm a 51 year male and in early January this year I noticed a lump appeared on the right hand side of my neck. No other symptoms and feeling completely normal and healthy. After getting this checked at the Doctors I was referred for a ultrasound scan at which time they noted the lump in my neck to be an abnormal lymph node and they also took a needle biopsy. After a couple of weeks I was given an appointment with ENT consultant who confirmed the biopsy showed a 5cm Level 2 Node and squamous cell carcinoma which is P16 negative. I have a PET scan on Sunday 3rd and MRI scan On Monday 4th with note stating provisionally booked for pharyngoscopy and bilateral tonsillectomy. After a camera down the nose/throat nothing abnormal noted so primary cancer not yet located. Chest x ray came back normal yesterday with no issues noted.
Since been given this information 10 Days ago the fear and worry has been all consuming I was struggling emotionally to talk about my diagnosis my appetite disappeared completely and sleeping was a near impossibility although as more days pass I am improving and managing to eat although more because I need to than wanting to.
The scans this week cant come soon enough to hopefully get a clearer picture of what is happening and what the future holds for me. The waiting and the fear of the unknown is the hardest thing and the feeling of dread and Knots in my stomach jus aren't going away.
I will keep updating as I know more.
P
Hi Dimitris
So sorry that things are so difficult at the moment…… sadly we have all been there. These were the worst fays for most of is the waiting and fears of the unknown totally take over.
For most of us once your team formulate a treatment plan and you start it these fears seem to disappear and your focus will be on getting through the treatment.
My advice stay off google, eat your favourite foods, do things that bring you joy and keep your overactive brain busy busy busy .
It seems things are moving very quickly which is great news .
Stick with the group, lovely supportive people , always someone on here willing to answer any question you have
Debbir
Hi Dimitris
You've done well in joining this group early it took me until well past treatment to join and i wish I had sooner. Everyone here as mentioned is right, the waiting and the unknown is certainly the hardest bit. Just waiting with thoughts and anxiety whirring round and round. Once you get your diagnosis as bad as that may seem it does then shift your mindset to you treatment strategy and hopefully a better nights sleep can return. Keep asking the questions and raising your concerns here if you need friends, we'll give you greatest advice in terms of experience and the support you need.
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