Head and neack

Hi James similar story to mine over 5 years ago. Blog below might help. Treatment is hard. If you’ve a feeding tube use it as it’s big going to feg any easier. End if week 3 I had ng tube fitted it was my lifesaver snd helped my recovery to be fairly  straightforward. Food is fuel and you need nutrition by any means. If you are ok at moment swallowing continue to eat furget food giving any pleasure it’s head down snd carry on. Remember our cancers respond extremely well to treatment. 
If you’re on painkillers take them by rote it’s all about controlling pain at the minute. 
Hazel 

Welcome from me James, but sorry to see you here. I had same as yourself and also had the Induction Chemo and then the Chemoradiation. It's tough for sure. Do you have a food tube in that would ease the pressure of having to ingest food? I couldn't face food tbh, just a few bites per day to maintain my swallow. I have outlined my journey in my profile and it may be of help in that you'll see you're not alone, even though we're all different, I can see the similarities from your post. Hang in there. Tina

Hi James.

Hello again on your own thread.

My cancer was just where yours started. I just had six weeks of RT 

Five years later I'm still here.

Tina and Hazel got through this and so will you, one day at a time.

Stay with us so we can help

Aww thanks a lot guys this really has helped, woke up this morning gosh my throat so dry, yes I have a feeding tube fitted that was not a very nice experience. I just really hope that after all this chemo and radiation it’s sorts it out that’s my main worry that it may have spread., are all you guys eating back normal now and living normal as you did before.

It’s never as it was but the only thing that remains for me is that my mouth is dryer than it was. During the day it’s no problem. I can eat most things as I did but at night it can be a problem. I tuck a xylimelt into my mouth after brushing my teeth and I e found taping my mouth keeps it moist enough for me not to wake. 
Husband and I live in rural wales and manage a smallholding as well as ever. Life is good. 
I can still, five years on, lose weight at the drop of a hat which is no bad thing really. 
Remember throat cancer is curable. Treatment failure especially in the first year is rare. 
HPV driven cancers respond very well to radiotherapy and cure rates are in excess of 90%
Hold onto that 

I’ve just clicked on your name beesuit and seen your story I’m not very good with technology. How do I join your what’s app group maybe a bit easier to communicate on there. I’m so frustrated because I love food and beer and with it been Christmas all the adverts on tv been food and everything. I still want to eat in my head but physically can’t. Havnt eaten much last 3 days really gonna have to get some of those fortsip drinks in today I think 

Hi James

7 months in after finishing ChemoRadio

I loved a hot curry, Madras, Jalfrezi etc but these are still a no go, but I can manage Chasni curry washed down with a couple of 0% alcohol lagers, drink a lot of 0% alcohol Guinness....I have not given up hope on the hotter curries. taste still improving.

Good luck

Peter

Can you not drink alcohol now? I love curry’s also.  

Stopped alcohol 20 years ago for a variety of reasons, still have a shandy now and again, but quite happy with 0%.

Curries still to be avoided at his time,  too hot,  ChemoRadio effect on mouth,  to me  they seem 10 times hotter than normal, tried  pakora with chilli dip for a starter when out for a meal couple of weeks ago....jug of water needed to cool me down.

Hi James, you have had great answers from the others, the thing I would add is, these side effects are what to expect about now. Don't suffer in silence let your team know, they can give you meds for most things, use your feeding tube, it will take the worry about not eating away. It's a tough treatment to go through, but it does give good results of a high cure rate. Have the best Christmas you can, early in the new year you will be on your recovery.

Ray.