Hi everyone
I thought I would share my story in the hope it helps someone. I have a tumour at the back of the right of my tongue. I am told it's stage 1 and hasn't spread to my torso. I found it as a lymph node in my neck was lumpy. The dr was brilliant and put me on the 2 week pathway immediately.
My treatment - that I have waited 4 almost 5 months to start has just begun. The wait has been stressful.
I had a PEG put in a month ago - and it's still sore and red - I have just finished 5 days of antibiotics. It was too tight to start with - something I believe is common - and because it wasn’t looked at for 2 weeks it had become inflamed. I was told today by someone who has the same issue that sudacream will help to act as a barrier ongoing so start that tomorrow. My tip - flag it if it’s sore before the 2 weeks - you could be getting better rather than waiting.
Having a mask made was fine - no problem - quick to do and waited longer to have it scanned afterwards than the actual creation. I had my first radiotherapy yesterday - no problem at all. Mask is tight but that’s needed and it’s over v soon, I felt nothing.
I have just got home from an all day 9am to 6.30pm having hydration, anti-sickness - chemo and hydration again with my second session of radiotherapy thrown in there. I was very anxious to go today - but it’s been fine - more tedious than anything else. I met lots of other patients and heard their stories and tips. I feel incredibly lucky to be where I am - some people have so much more to deal with
So far so good - I’ll let you know how it goes……i know that there is a cumulative effect and I will have more issues. But for anyone just starting out they may benefit from my experience .
Hi Rupertsmum
Welcome to our little community.
There are quite a few people here sharing the same journey. I’m sure you’ve looked through a few posts. We all keep each other company and prop each other up
I hope you stick around and share your thoughts some more and I hope it goes smoothly for you.
Dani
Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019
