Hi, my name is Neil
i had throat cancer and received chemotherapy an radio therapy for same, the treatment finished in Nov 2020, problem now is my throat muscle as been completely closed since dec 2020, had operation to open my throat muscle which involved two surgeons of which one went in my stomach up to the throat muscle and other went down my throat to cut way through my throat muscle, I then had 9 throat stretches to open my muscle up to 20mm, when was achieved the bile in my stomach kept coming back up my throat which put me in hospital for 10 days, they have let my throat muscle grow back together so not taken anything by mouth since Dec 2020, just wondered if anyone else been through this and is there any light at end of tunnel
Hi Neil. That’s an awful state of affairs. So sorry. You’ve been through a lot. What does your team say? If you are permanently fed via PEG there are better foods than Ensures and Fortisips but you have to make them yourself. I know a lady who looks and feels wonderful on her regime after abandoning the prescribed foods
Best wishes
Dani
Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019
Good evening Neil, sorry to hear your problems, are you talking about the esophagus as that is the only thing i can think of where they stretch it to keep the swallowing tube open, they can then insert a lary tube that goes down the esophagus keeping it open, they also do dilation of the swallowing tube which sounds what you have had. I have never suffered from this but due to damage to nerves and muscles my actual swallowing was affected but not my esophagus, i cannot eat solids and am PEG dependent because of this although i can swallow thin liquids at a slower pace. Did they say why the bile kept coming back up, maybe its worth getting a second opinion just to make sure there is nothing further that can be tried. Don't give up hope, i live quite a good quality of life and have been like this since 2010, wishing you all the best, take care,
Chris
Its sometimes not easy but its worth it !
Thanks Hazel, hope all is fine, hugs .
Chris xx
Its sometimes not easy but its worth it !
