Recent Mouth Cancer Diagnosis

Special thanks to you both Dani & Hazel. I have  read both your bogs. Truly inspiring and the amount of help and encouragement and support you provide for fellow posters like myself. xxx

No thanks needed but thank you anyway we both do it as we’ve been there got the t shirt so to speak. 

You can’t beat first hand experience although we are all different we all have tips that might help. 
hope blog gave you some reassurances. 
Hazel 

You know we have both been there. I thought I was going to die when I first found my cancer but though I lost faith in my body at times I never lost it in my team and all the wonderful people I met here. They all got me through and I will be forever grateful. it’s why I am still here.
Even though you’d be hard pushed to find a more disparate pair Hazel and I are now lifelong friends which can’t be a bad thing, 

Any tips on what to try and eat? No feed interests me in the slightest now 

High calorie stuff. Forget your cholesterol level

Fortify everything with butter and cream.

Smoothies with peanut butter banana and ice cream. Throw in some Avocado

There are lots of recipes for high protein smoothies on the internet 

Scrambled eggs with philly to keep them soft are good. Poached eggs 

Crumpets smothered in  Lurpak

Ready Brek with full fat milk and cream. 

Tinned rice pudding, macaroni cheese. 
Tinned peaches slide down effortlessly 

Im sure people will come up with more

Once  you can’t eat it’s time to just put the replacement drinks in your feeding tube. You’ll need 3.5K calories. 

Hi unfortunately there’s no magic wand like I ssud if yiu csn still swallow just forget about pleasure ir enjoyment. At your stage food was like cardboard it was towards the end of week 3 I had my feeding tube. You  may need to start using your peg that’s what it’s there for. It’s important that you don’t loose weight I had the dieticians on my case every week. Yiu csn use full fat milk on cereals ready brek if ooryidfd. Poached eggs are protein please be careful as calories are important. 
Hazel x

Hi I had part of my tongue removed so still eating semi soft food, you could try farleys rusks mashed in milk, a drizzle of honey and microwaved for 30 seconds. The rusks have vitamins and minerals, albeit for babies but it's helped me as I could not tolerate forsip liquid good at all so had to force myself to eat more food

 daddypig 

Yes honey us good but fir the moment I might suggest cheap supermarket honey which is bland. Real honey has a bite to it as it’s full of enzymes and might be a little irritating 

Hi Daddypig

I know exactly how you feel. I had tumor on parotid gland and had 35 sessions of RT. I lost my taste, appetite, saliva and weight. I was admitted to hospital at treatment 32 and fed by NG tube for 4weeks I am 77 and live alone.

For weeks after I was home I lived on Tomato soup, Custard, and Enshake then Fortisip and Nutricrem dessert, Weetabix with loads of honey full fat milk and cream

I had no interest in anything and eventually gave in to the Cancer Nurse to take an anti-depressant 

Anything I tried tasted like cardboard This lasted a good 6 to 7 months and taste gradually started to return Now 19 months post treatment all is good though some things I used to enjoy do nothing for me

I didn't take alcohol for 12 months (it tasted horrible) I now have a pint of Guinness every afternoon and it helps with my appetite (and has as many calories as Fortisip) I still go to the biscuit tin and pick the ones with most calories!

When at your stage it's hard to see that things will improve but they will. I was well on my way to recovery when I found this site and I wish I had found it sooner. To know there are others who have been there gives you encouragement.

Hang in there it does get better!!

Ivan

I used my PEG from week 4 - overnight via a small pump. I then tried teaspoons of various foods to try & keep swallowing. As the weeks went by I managed creme caramel, Skyr, custard & cream off mini trifles, tiramisu, cheesecake ( not the biscuit base). Progressed onto weetabix with whole milk, choc milkshakes, & gradually introduced bland soups, tinned peach slices, cakes with squirty cream. Scandishakes were very useful as I weaned off my PEG as they are 600 calories when made with whole milk. 
It’s a very slow, frustrating journey but you WILL get there. I’m on holiday in Mallorca at the moment & eating is once again pleasurable. Keep going!!!!