Tiredness

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Sorry, me again! I am just wondering how long everyone felt tired for after treatment ended, as its been two weeks (not long I know) and my husband is utterly exhausted.

i would like to find out what others' experiences were as to how long it took to get back to (even!) some kind of normal!

also, his neck (lymph nodes) aew  still a bit swollen, is that normal as Im scared its still the cancer...?!

  • Hi, Chicadee, this is normal, the RT carries on working for about 2 weeks. He will feel exhausted, and he will have to rest so his body can heal itself. We are all different so there is no real time scale on recovering, some take longer than others. It will all get better with time. Unfortunately, it's a marathon not a sprint. But he will get there.

    Ray.  

  • Hi,

    I am six weeks out from treatment. I am less tired and I am able to do more (short walks every day, reading, hobbies, household organising and letter writing etc). 
    That said, some days I still fall asleep during the day and I am exhausted if I have an outing (doctor, dentist etc).
    Three weeks ago, I had an adverse reaction to the chemo drug cisplatin (yes, that long after treatment!) and I was hospitalised with dangerously low potassium. At that stage, I was exhausted, had brain fog and could barely walk. 
    I think it just takes time and everyone is different.
    I am way off being back to how I was pre-diagnosis.
    If your husband is concerned about his neck, then he should ask his team to have a look. My neck was very swollen after treatment and that has slowly gone down. When I saw my oncologist last week, she felt my nodes. I asked if she could feel something there and she said "yes". I felt slightly freaked out and asked her if she would expect to feel them after treatment and she said that it was quite common. The treatment goes on working long after the actual rad and chemo sessions. So, a tumour and nodes might still be shrinking for many months.    
    Best wishes 
    Steve

    Diagnosed Feb 2023 with base of tongue cancer, oropharyngeal squamous cell carcinoma (OPSCC), HPV positive, staging: T4aN2CM0