Recovery after radiotherapy

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Hi, 

am 4 weeks done of recovery after radiotherapy to my upper jaw and neck. Now I am on my fifth week and the symptoms of my mouth mucositis feel worse and the mouth is randomly white and then pink and then white again. 
I have ulcers as well. 
the saliva in my mouth is sticky and I feel like I may have pjs in my mouth some times as well. 
When am cleaning with salt water rinses it make my mouth feel slimy and sticky more. 
I have swelling which feels like it’s getting better but then goes back to worse again. 
can anyone help and tell me what I should expect. 
I had 6 weeks radiotherapy after surgery and 1 dose of chemotherapy. 

thank you. 

  • Hi Tomatoes. What you’re finding is about par for the course. I found diet ginger ale was good for my sticky mouth. That and spitting a lot. I went through a few kitchen rolls. Some folk use a nebuliser but I simply stuck  my head over a bowl of steaming water. 

    I used BioXtra mouthwash to freshen my mouth. That was a godsend. 
    Do have your mouth checked for thrush. The yeast thrives on damaged tissue especially if it’s bathed in sugary food all the time. 
    Sometimes my mouth was ghostly white for no reason too. 
    As far as the ulcers go it’s just time. Radiation ulcers take a long time to heal. Keep your mouth as clean as you can. Get into interdental spaces with brushes and use a soft brush on your teeth. It does get better. 

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    I BLOGGED MY TREATMENT 

    Macmillan Support Line -  0808 808 00 00 7 days a week between 8am-8pm

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  • Hello,

    Adding to what Dani says, very similar for me too! All the symptoms you're seeing now are indeed "normal". It feels like 2 steps forward and one (or 3) steps back in the early days of recovery. Very frustrating, especially since you've been through so much and quite frankly I was expecting a gold medal and a quick recovery once the blasted RT/chemo were over! We certainly deserve it!

    But don't despair, we do get better and the mucus (which felt like it would never end, I spent some days just spitting, honestly...) does just go as suddenly as it started. Dry mouth then becomes your bugbear! Sounds obvious, but take it 1 day at a time and aim low, so you'll feel you always meet (or usually exceed) your own expectations. Make small goals, then anything you do beyond that feels like a win! 

    My treatment finished August 12th and I started getting about more by end of September, noticed real improvements through October, and went out for dinner on my birthday (mid November) and enjoyed a glass of bubbly! You will get there, but I feel your frustration, I was exactly the same...

    Helen x